Sarcoidosis: But You Don't Look Sick

FSR frequently hears from patients who were hurt by comments along the lines of "you don't look sick." To raise awareness among the public and health care professionals about the serious consequences of sarcoidosis, the Foundation asked patients to send us their photographs (or of loved ones who have passed away). We are immensely grateful for the outpouring of support and we received more photographs than we could use in the planned format.

Category:

Nonprofits & Activism

Tags:

• Sarcoidosis
• awareness
• KISS

[WildNice]

This fucking disease feeds on negative energy! David Icke is the guy who claims that there are invisible aliens/demons of some sort that exist on earth to feed on negative energy. I thought may be a con artist, but i always kept that theory in the back of my head. Sarcoidosis may not be alien nor the text book definition of a demonic entity but it seems to be pretty close to what he's talking about This is a fucking "Creature" literally feeds on stress and negative emotions!

[WildNice]

Sometimes I live life pretty much as normal, but then I'll have some new stressor in my life and BOOM! I'm new to all of this and I am just starting to notice but just yesterday I had a stress full incident with my ex and just hours later i notice the inflammation in my eye is starting up again. So I am about to go on a stress exorcism!! Literally! Funny just the thought of eliminating as much stress out of my life as possible is making my eyes feel better!

[WildNice]

I have it too. This disease just keeps getting worst and worst. It's already destroyed my kidneys and starts attacking other part of my body organs/eyes/lungs. I have noticed something though, stress is definitely a trigger! A lot of people say certain things you eat are a trigger as well and that is probably right, but stress was definitely a trigger. For most of my life I was mostly stress free, had some very rough times for about 3 years and after i escaped that rough patch I had the illness

[LilJ22799]

I was diagnosed with Sarcoidosis when I was only four years old and there's yet no cure for Sarcoidosis...I suffer every day with it. I can't see out of my left eye fully and my left eye used to swell and I would be stiff all over. But now that I'm older and understanding Sarcoidosis, I accept my challenges. We all, patients of Sarcoidosis, can survive Sarcoidosis because we have heart to fight it.

[lordisholy1]

Diagnosed for a while i can't remember when but. I'm gonna fight until the end :)

[Elijahdaughter]

Just diagnosed with Sarcoidosis, still trying to understand what happened and how this could have happened to me.

[southstarentdjchaos]

I HAVE BEEN FIGHTING THIS SINCE 03 AND IT IS A HARD FIGHT BUT IM NOT GONNA GIVE UP I HAVE LOST EVERYTHING SINCE I CANT WORK ANY MORE AND PRAYING THAT I GET MY DISABILITY SO I CAN STOP DEPENDING ON MY FAM TO TAKE CARE OF ME .. GOD BLESS THE PPL FIGHTING THIS I KNOW WHAT YOUR GOING THRUGH!!!

[MrJBRoch]

My Wife has Sarcoid, and I am thankful she is getting the treatments and care she needs. Also I am thankful for folks like you who are helping to bring this horrible mess into the light for many who simply don't get it.. Happy Thanksgiving.

[sillytubeify]

It's hard to prove that you hurt. I had 3&1/2 liters of fluid removed from rt lung along with tissue after being told they couldn't find anything. Told they didnt know what was wrong when they opened up my left lung in a wedge resection to remove fist size sarcoid from pericardia wall. And told to just to chill while one pushed my eye out of place. I'm lucky n glad to be alive because I insisted something was wrong. I'm not making this pain up.

[timeout61]

thank you. it answered more questions within me i struggle for a while but not able to prove, or express it well to others even closes friends, it until watching this clips the puzzle came clearer. i hope once treated with this Sarciodosis i will learn alot about myself and empathy for other. GOD BLESS YOU...