Chronic Lymphocytic Leukemia (CLL)-Mayo Clinic

Mayo Clinic Dr. Tim Call describes Chronic Lymphocytic Leukemia (CLL), its diagnosis, and treatment options for patients with CLL.

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Science & Technology

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• Mayo Clinic
• CLL
• Diagnosis
• Treatment
• Call

[Titant2]

@Titant2 (about my fathers situation)

[Titant2]

@Josh1980z

I am sorry to hear that, however for now i remain positive.

[Josh1980z]

@Titant2 My Father was also a fit and healthy man who ran marathons and was an avid gym junkie. Please god may your father continue to beat the dragon that is CLL. My father unfortunately wasn't so lucky.

[Titant2]

My father was just diagnosed. But he has type 0 still. No treatment needed. And he is in top condition, runs marathons and is 57. I hope this remains untill the day he dies of old age.

[Josh1980z]

My 63 year old father Peter Lewin Sadly passed away on 25th November after suffering from CLL for over 8 years. My father was a brave, brave man who fought like a lion until the very end. To all the CLL sufferers out there i wish you nothing but the best and i also wish you all a full and speedy recovery. Dad I miss you and I love you very much. X

[bimjim01]

Thanks, dprosenberger... I am now on my third oncologist - same hospital - and the at least the most recent one tells me that unless things change drastically I will have about 2 to 3 years between the chemo cycles.

My white cells remain below normal but leukocytes are in normal range. I am prescribed 2 Septra antibiotics 5 days a week to fend off infections. I also take additional if my wife gets a cold or I feel slightly "off", and that appears to make a real difference.

Thanks again!!

[dprosenberger]

@bimjim01 I was diagnosed 3 years ago and the studies I have seen indicate approximately 65% of CLL patients die due to complications from pneumonia as our immune system stops fighting.

[pagansoul1]

I'm 23 years old and suffering from CLL. My oncologist did not put me on the rituxumab. I am currently on prednisone and chlorambucil. Both my liver and spleen are enlarged in addition to enlarged lymph nodes. I'm going to talk to him about the rituxumab, since he hasn't mentioned it at all. Thank you for the information.

[gallohad]

My father at the moment is suffering with CLL and begins his Chemotherapy in a week's time

Because of his young age and his good health they have decided to give him 3-4 days worth of hard Chemo. They have told him EVERYONE reacts differently, he could go through these 4 days worth of Chemotherapy and not have to have any treatment for the next 5 years. They have also told him 3-5 years life expectancy but that is according to surveys of people who have bad health and above the age of 70+

[bimjim01]

At the time I started the chemo, in December last year, my red blood counts were only being maintained by the transfusions... indeed, I had a blood transfusion before I received the chemo. My employer's insurance was covering the Rituximab (about CAD$6,000 per bag), but OHIP now covers that as well.