NEUROFIBROMATOSIS
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Uploader Comments (lilbethy84)
Top Comments
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yo tambien tengo esta enfermedad.
¿Que habremos hecho para merecernos esto.
Dios no existe.
3 years ago 2
All Comments (32)
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As one who myself has a very mild form of NF, it is challenging to explain to others. Others often seem scared, confused, etc. We are just people like them! We may have some different challenges, but we laugh, live, love, etc. Don't worry about people's often hurtful comments/actions. You are perfect just the way you are!
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me and two of my kids have nf1
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hello! thanks for posting this. I have N.F. 1 Doctor told us when I was 10 yrs old. now I am 45. It has made my life very difficult! cancer, & interstitial -unknown seizure disorder are just the high lights! But I'm still here. to the surprise to a few doctors! Hang in there guys, if I can, ANYONE can. If you're ever feeling sorry for your self, go to discovery heath, there is always someone who has it much worse then you or I. Good luck to you all & remember we are NOT alone. we got the web!
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Very nice. I made a video about NF too.
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Thank you for making this I have NF and i did let it get to me when i was growing up all in school i missed on alot of this just bc of nf... alot of people dont know about NF and make of you people that have it i wish they knew what we had and have to go thought. its not easy all the time..
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I also have NF 1. It sucks big time.
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Very Nice video. Thank you for taking the time making this video. I also have NF.
Live in Chattanooga, TN
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50% im pretty sure
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iam 26 and iam suffering from NF-1 too.But only in my whole family who is suffering from dis.......but i dont care ane more, I go to gym,swiming and dont care about other people even if they stare at me......what else can i do.........?
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I Have NF-1 too, but no one in family have this genetic disorder its only me who is suffering and more worried when I heard that there is no treatment for them.....As iam going to marry, just wondering what is the probabilty that dis genetic order will transfer to my children.......
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squigglepiggles 4 years ago 4
The reason no one understans it is cus they dont know how it is or what it is even like to have it. they are clueless, however - if they had it then theyd know exacly where we are cominh from, We are Strong people who can live to talk about it and realize that this is how god made us!
lilbethy84 4 years ago