Pachyonychia Congenita Rare Disease Video Contest 2011
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Uploaded by Pachyonychia on Sep 22, 2011
Please LIKE this video on YouTube (click the LIKE hand.) PC Project needs your help to win. The software will be an important tool as we move forward in research and clinical trials for Pachyonychia Congenita. We know that the advances we make for this extremely painful rare disease will also benefit research for many other disorders and help patients around the world. Please vote now and send this link to all your friends and family members -- and ask them to LIKE us on YouTube.
see www.pachyonychia.org for more information
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I've had this all my life (28 years), and it was always misdiagnosed as Palmoplantar keratoderma (PPK). It was Pachyonychia Congenita (PC) the whole time! The doctors had no idea. It explains why the keratosis is so painful, and all of the other (seemingly unrelated) symptoms I've had. Thanks, internet, and thanks to the PC project, for letting me know that I'm not alone in this and that someone is actually finding out what's going on. :)
cmangy 3 months ago
please 'like' for flynn and other sufferers around the world
dignjfm 5 months ago
for you flynnie ;-)
broomfish 5 months ago