Re: Chronic Fatigue Syndrome/M.E: Have a heart

Go to - www.youtube.com/wizardscar to see my new 'project' about M.E - From M.E To You
It'd be really great to have your support :)


This is my first entry into my diary about having M.E
The second, third and fourth entries are now up in my videos section - have a watch!

Please watch and comment and stuff if you suffer from M.E/CFS or any other type of illness that most people don't understand or even think exsists.

The intro is quite long but I love the song so plz brave it out.
:)

Music;
Life on Mars - David Bowie
I obv don't own any rights or anything to this song.

Category:

News & Politics

Tags:

• ME
• CFS
• chronic
• fatigue
• syndrome
• myalgic
• encephalomyelitis
• diary
• life
• on
• mars

[neelubird]

Good vid. I have ME (or whatever is CFS? I'm still confused but agree with what Byron Hyde says on that whole can of worms) too which has caused sleep reversal (so I'm awake much of the night and asleep through much of the day). I'd forgotten one of the perks would be missing out on daytime TV lol but I still get what you mean about thinking too much about a silly program and realising what this illness has done to you.

[plzsupportme]

I'm glad you like my video.

CFS stands for Chronic Fatigue Syndrome.

I suffer from sleep reversal aswell so I know what you mean.

:)

[Elfins]

I am sorry to hear that you have ME/CFS but can I say what a wonderful start to your vlogging, I really really enjoyed it and look forwards to listening to your diary in further vlogs. My daughter has Ehlers-Danlos syndrome and suffers Chronic Fatigue due to that. Although its not the syndrome persay, many of the symptoms are very similar.

Well done

Linda x

[plzsupportme]

Thanks

:)

I'm glad you enjoyed watching the video.

[fogggygyrl]

Wow. "Why have I been dealt such a useless hand of cards?" Excellent question and great music choice. I'm a Bowie fan too.

I was wondering if it was just accidental that you were filming chemtrails in the beginning of your video. Sometimes I wonder if there is a correlation to these illnesses but it's probably just that I'm spending too many all- nighters reading conspiracy theories online.

I hope you get better soon too. You're really working hard at it.

[plzsupportme]

I'm glad you like the video

:)

And yeah, it was just a coincidence actually.

[500andup]

Hey!!

I suffered from ME/CFS for over a year but recently things have been changing, take each day as it comes and keep faith. I am now back as good as i am going to get i reckon :D I even managed to sit my exams and secure myself a place at university! Take care and i hope you are as well as possible

oxoxox

[StressedChihuahua]

Bowie fan with ME who watches "Homes under the hammer" checking in. This video brought me to absolute tears. I want good health and I hold onto the hope that a cure exists. Thank you for the video. Hold on I believe a cure is out there! E-hug!

[CoolCollectableToys]

Obviously it depends how bad you are with the M.E but try and do things in stages, always listen to your body. A negative can always be turned around into a positive though it easier said than done. Its good that people are openly talking about it, this will help. There are many causes and there many things that help some people and not others. Even if you are in a big dark hole and you cannot see a way out, you will eventually, there is light on the other end.

[ReviewCam]

great video! you're very creative and the music is perfect.

[TheJennbooth]

My body was eating away at the lining of my large intestines. It though it shouldn't be there, that it was a virus.

My U.C. is now under control, but the drugs being used are making my CFS Worse. a lot worse.

But IT GETS BETTER!!!!

My mum went through the exact same thing 10 years ago... Now she is fine... :D

We will survive this.

[TheJennbooth]

The It Gets Better Project, is primarily for LGBT Teens, but it also supports other bullied kids. I was bullied a lot by pupils and teachers at my new school. Luckily I was only there for 2 weeks full time. I tried really hard to go in, I though it was just my UC. I didn't have a diagnosis of CFS yet.

I became depressed, not cutting, but I stopped taking my meds, which is a form of self-harm, as it let my immune system go wild again.I was anaemic. I started to get horrific stomach aches, again

[TheJennbooth]

I know exactly what you mean. I gues in a kinda sick way, I was lucky, I was diagnosed with Ulcerative colitis a year before CFS. My first year off school I had a 'real reason'. if you know what I mean. I had visual proof of how ill I was, so people were slightly more accepting. I start my sixth year of being ill soon.

The first few year were really hard, tired, dizzy, aches and pains feeling sick ect. but now, I am better than I was last year. And last year I was better than the year before.

[AshTheFallenAngel]

i know exactly how you feel. i realise you posted your comment 6 months ago, but i thought i would take the time to reply. i hope you are feeling better! Never lose hope.

[Snowberry23]

I havent been to school for months because I feel to ill all the time, I missed my exams and theres no future fore me. Everyone just thought I was mentally ill and had social problems. They still do :/

[sashaandshelby]

Yes, resting up to 3 or so weeks prior is a must for me, even then the holidays are still a challange, for me the emotions brought out

at this time of year trigger some of the symptons that easier to manage at other times of the yr. it's usually the one and only time

I see most of my extended family and the feeling of being "invisable" (due to being housebound the rest of the yr) can be overwhelming. This year I was happier to get back to my home than I was trying to be there, so sad....

[jayomafia]

does any1 elses cfs get unmanagable around christmas,i almost died last christmas and could barely walk the 2 before,good luck over christmas guys