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EVANESCENCE out of the shadows for Epilepsy

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Uploaded by on Jul 29, 2008

ITS A ROLLERCOASTER FOR MY SON RICHIE WHOM HAS LKS EPILEPSY AND MANY SEIZURES

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Uploader Comments (THUNDERROAD22)

  • Im so sorry. Your son is absolutely precious. My husband has awful seizures daily, I know how it feels to watch the one you love go thru this.I pray for more "ups" in your life. If you ever want to talk please message me anytime, ANYTIME. ~Jennie

  • thank you for the kind words Jennie, I lost my wife 8 years ago basically due to a grandmal in her sleep...so I know it from both sides...Enjoy everyday, and most of all I am sharing these videos etc, to raise awareness...God bless, Rich and Richie

  • If I could've taken that from your little boy, god I would. I have epilepsy, but hey hey long story, wasnt diagonosed until I was 19. My thoughts are with u all, am always here if I can ever answer any questions. Kelli x x x

  • i had, grandmal, tonic clonic, absent, and other seizures, i had it sinice the an infant seconds after being born

    im 25 years old now and still have every i hope  it well go away but it dosent

    my thoughts are with you

  • Kirsty, our prayers and thoughts are with you as well, Richie's epilepsy brings every kind of seizure known, and he also suffers from Landau Kleffner Syndrome, and epileptic condition that robbed his ability to speak and recognize speech for 3 years...Just remember you and Richie are not alone, utube has been a good place to share, learn, and make friends, while raising awareness about epilepsy...Good luck in your on going battle...

  • thank you Kelli, his seizures are very violent these happen to be taken after grandmals, or his postal time...me and others are trying to raise awareness about epilepsy etc...utube has been a good venue for making friends and getting and sharing information...Good luck with you battle, you are not alone...

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  • awwww he is sooo adorable! almost looks like my cuzin hahah xD

  • There's not many videos that bring me to tears...This did because I am reminded of how I am not alone and that there are others who live with epilepsy

    I'm so grateful to my family for all their support and never giving up when it would have been so easy to

    I have been diagnosed with epilepsy since I was about three years old (I'm now 22) and I refuse to let it run my life or hold me back...It's not a disorder and I'm not ashamed of it

    Thank you for posting this video

  • This is one of the sadest videos I have seen. I have Epilepsy since I was 3 years old.

  • Excellent video; thanks for sharing!

  • I hope he grows out of it. I'm not very educated about epilepsy, but I have a friend who has it, and a cousin I grew up with who had it. I never understood why he couldn't play sometimes and why he had to take so many "time outs" when he COULD play. I'm sure there are many types of epilepsy, my cousin grew out of his by the time he was 13. I really hope your son gets some relief. I do not know what it's like to have a seizure, can someone fill me in?

  • Strange, I am Epileptic, I live every day the best I can, yeah I don't like my meds.... it's strange cause I listen to this song allot.... it reminds me of my Epileptic self, I have 3 types of seizures throughout my life.

  • this is sooo touching! my friend has epilepsy, and i worry bout her every time she has a seizure (grand malls), i wish u the best in life, and he seems a lovely lad!

  • Hi Thunder,

    I have epilepsy too (janz-syndrom) and I think it's a good way to show the people which kinds of epilepsy excists. So much people are loughing about a grand mal seizure and have no idea what it means to live with epilepsy. god bless you, your son and your whole family and i wish richie all the best from the bottom of my heart.

  • HI there THUNDERROAD22 if i could i would trade places with richie just to relive u of all the waries . Richie realy look lika a energetik and playfull boy . I also have Epilepsy and know how ruth it can b i only have 2-3 sz a month

    God Bless and stay strong always stay strong coz God listans to all our prays it may take time b4 we c the rezults of our faith but always stay strong

  • He's such a beautiful young man who will be such a heartbreaker when hes older.. I wish you all the luck in the world. xxx

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