S.L.E. Lupus Foundation: Life Without Lupus

S.L.E. Lupus Foundation, 2007

For nearly 40 years, the S.L.E. Lupus Foundation has helped people with lupus
and their families, funded lupus research,
and raised awareness of this chronic illness.

Category:

Nonprofits & Activism

Tags:

• lupus
• systemic
• erythematosus
• sle
• autoimmune
• nonprofit
• public
• service
• announcements
• healthcare
• women's
• health
• nephritis

[MissRomyy]

Hi there..I'd just find out in November 2008 that I have SLE. I'm 17years old.Before i knew that,i was in the hospital for 5 weeks.I'm still worried about my disease.But I must live with it.I have much medicine that will take care the SLE.One of the medicine is Prednisone.I really can't take it anymore. My face is a lil bit swollen.Some people just don't understand.Sometimes i get mad at myself..but god made me the way I am. Can't help it.I'll have learn to accept the disease and to love myself.

[MommaAng]

I felt so validated when the young woman talked about her doctor telling her to seek psychological help, that it was all in her head. That was the worst part for me - as soon as a doctor reached the limits of their knowledge, I was labeled and dismissed. I actually started doubting myself at one point. It sucks to have lupus, but it's great to finally have a diagnosis. Bottom line: DON'T GIVE UP. No one knows your body better than you.

[doris8132]

@betaroars stay strong dear

i have SLE too and i feel pathetic sometimes

but i know this is just a challenge god gave us

there are many people poorer than us on earth, really

im sure we are chosen to be strong to overcome these sufferings

[betaroars]

I hate having to explain myself because no one can see how sick I truely feel. I feel pathetic. I batteled depression and suicidal tendencies, and a year later from recovering the said i find out I have lupus. WTF. Im starting to think God doesn't want me here and I can't take it.

[betaroars]

@MissRomyy I was diagnosed this most recent past easter weekend. Im 19 years old. Im in the same boat girlie. I cant take it anymore either.

[MommaElin]

@MantaoManjyu But life with the wolf thought me more than I could've asked for. I am truly thankful for this life, I wouldn't want to change anything. Somehow I became so strong, so loving, it was the greatest challenge and it showed me I am so much more than a body. To learn to trust, to let go, to love are the blessings that came with this life. To become totally free from medicines and choose peace and healthy living was part of the journey. We can all do it by loving ourself no matter what.

[MantaoManjyu]

@MommaElin I wanted to become a ballerina too. The oppurtunity hasn't exactly passed, but i don't see it anymore.

[maidwithluv]

fucking bullshit, my mom has lupus for 4 or 5 years, and shes suffering so much.

[K0MTESSEN]

My problem with my diagnosis is that my family and friends do not believe that I am ill. What they can not see, they can not understand. You're not sick, you're just lazy. And must admit that it crushes my heart a bit every time they say that, I really don´t have the right support :-(

[K0MTESSEN]

I got my diagnosis in June this year and I am still waiting to find out how bad it is. I got a rash on my face for so many years ago and my dermatologist thought it was pimples. But then I changed my dermatologist and I got answers to what it was. I am often very tired and my knee has bothered me for many years now, without my doctor found out what was wrong with me. But I hope soon will have more clarity about my lupus

[angelstar1]

I was just diagnosed with SLE Lupus in Aug of last year. We are still trying to find the right treatments for me to maintain the illness. I'm a fighter though and I do have my good days and bad but i am so thankful to have another day with my family and be around those who care about me. We will find a cure! God bless

[LuluHeeNim]

my mom was diagnosed with SLE 18 years ago....she's so sick and i feel why her? she's a wonderful person..i'm so sad