PK-Who-YouTube

PK-Who is a documentary about individuals living with (PKU) Phenylketonuria and their challenges.

This documentary seeks to raise awareness about the dire consequences these individuals face if this genetic disorder is left untreated.

To learn how you could help please visit the National PKU Alliance at http://www.npkua.org/ and California Coalition of PKU and Allied Disorders http://www.ccpkuad.org/

Category:

Nonprofits & Activism

Tags:

• PKU
• Phenylketonuria
• 7D

[SlankTV]

This is sad, I feel so bad for the people who didn't get it treated :(

[Kikarama87]

Wowww maybe alot of mental retardation from days past came from this!!!! Unbelievable...more studies need to be done.



[britishdaisy5]

My mum had always told me and warned me as to what I could be if I deviated from the diet (cPKU diagnosed at 10 days), but wow. What an eye opener. What an extraordinary reminder of the necessity and value of medicine.

[bitesizereeses]

@dionstrezlecki i was diagnosed with Classical pku at 9 days old in 1986

[jannabobable]

@kksunshine69 : No, this is a national bill, though the number will change when it is reintroduced to the house and senate this year. You can read about and write to your legislators . Visit CCPKUAD.org and click on "advocacy".

[trl40]

Wow I have treated PKU you forget what could have been

[kksunshine69]

is this HR 4926 something that is only going to happen in Cali? or will it be nation wide? Also I live in Nebraska and I am 28 and have had PKU since birth.

[littlestsweetpea]

We have a 1 year old with PKU and as difficult as it s, we are truly blessed. Thank you for making this documentary!

[sammybluebell]

awesome!!! 

[dionstrezlecki]

excellent phenomenal