EDS IS A PAIN IN THE EVERY WHERE

This is a video i made talken about some thing called ehlers danlos syndrome or eds We are all zebras and we are not all alike/

Category:

Education

Tags:

• Ehlers
• danlos
• syndrome
• Medicine
• chronic
• pain

[EDSGIRL021]

Thanks i am glade you liked it i have a new one up

[Hotelmotelkfc]

The Pain is very real BUT IT IS IN YOUR HEAD darling. Exercise does wonders. Start slowly and bulid up. Education and changing your mind, STOP focusing on the pain as hard as that may be. Start thinking you are healthy. And stop with this crying depressing attitude. Get proactive, you have to cure you're self. There is nothing wrong with you. I know you have pain. now start thinking you do not have pain. IT WORKS if you just change your mind and your lifestyle.

[Ninnisworld2901]

Hi Megan, wishing lots of strength to you, and as little pain as possible, however since your joints etc. are dislocating very easily, I would just suggest, that you loose some weight, to relieve your skelett.

There are many illnesses, we can't so much understand, because they are not as obvious, I had cancer 3 times, I guess people did not understand until I had lost all my hair from chemotherapy. I went thru hell but got back up, I am wishing you the same.

[qualityliving07]

Megn, Thank you for producing this video for education. I also live in St. Pete Near Treasure Island. I was in a car wreck and suffer terribly for 7yrs. People don't understand unless they go throug pain. The medical system is this state is deplorable! I do healing and currently have met a friend from Tampa that is doing healing for me that helps! I also go to the beach often to just float as it helps too. I'm going to remember you in my prayers. Ceil : )

[drooooopy]

Whats really ironic is my whole real bad set of leg injury/re-injury nightmares (as those with EDS know, some of us heal very poorly) actually really started as I literally stepped off the curb -- walking away from a hospital where I'd just been to visit a fried who'd been in there. Just simply stepping off a curb into the street to cross it, bam.

Instead of turning to go back (fearing disbelief), I refused to turn back, & continued hobbling (very vicariously on one working leg) on my way home.

[drooooopy]

I have EDS.

I was offered an electric scooter prescription by my doctor the year I kept repeatedly throwing my legs muscles out so badly (alternating as I'd then overuse the best leg, back and forth). I refused, fearing I'd never get off the thing once I took it. I was a bit overweight and this compounded things greatly. I have to mind my weight in able to walk and not start the injury process over again. It can still happen but far less frequently.

[flyinggoatman]

meg i am sory for wot u have i have eds but not that bad sorry

[BuddyBoy091994]

i hate when people call me lasy when i cant stand up or walk.

they dont understand me either except one of my doctors does because she has so many patients with it

[UKastro]

Just smoke weed

[jinnai7]

Hey, I have a friend with early onset osteoarthritis, and ive seen how painful and disabling joint pain could be.

hope you find someone who understands

[ianclark001]

Hi Meg, you sound like you're really struggling and people aren't listening. I just looked up on Wikipedia about it, and it relates to a collagen deficiency doesn't it? Could the doctors not simply do tests to examine your collagen to see if there are issues there?