Heather Rileys Battle with Epilepsy

Video for Epilepsy Awareness Month. My daughter has had epilepsy since she was 2 years old.

Category:

Education

Tags:

• Epilepsy
• seizure
• developmental
• delay
• sleep
• apnea
• atonic
• complex
• partial
• Vagal
• Nerve
• Stimulator

[gramattmom]

Wow your daughter is Beautiful..I cannot even imagine what you go thru on a daily basis, but you are doing a GREAT job as a mother to make her life as normal as possible...This was posted about 3 years ago how is she doing now?? I will be praying for you and your family..

[Denae1977]

@gramattmomMy daugther has gotten worse, she had brain surgery a year ago. She has a website we keep updated you can follow her journey there- caringbridge . org / visit / roo

[SuperTashaC]

I don't know why it took me forever to find this video this is a very very good video, it Chronicles her journey from the very beginning up until now. Very thought out video

[Denae1977]

@SuperTashaC Thanks Tasha ;-) you know there are a few missing chapters. I have one from her brain surgery that I am working on, thats the hardest journey we have taken so far.

[Aarendir]

Your daughter is absolutely beautiful. I can't possible begin to imagine what you have to go through. You're all amazing people for devoting so much to her; my mom works with delayed children and children with severe epilepsy like this, and most of their parents simply aren't strong enough to be able to handle it. I wish the absolute best on your daughter and your family.

[Denae1977]

Thank you for your kind comments. Our daughter is amazing and deserves everything we can give her. She is really the one thats amazing. :-)

[MizukiAnne3]

I live life to the fullest becuase I never know when I might go into a seizure and if my eplispey will get worse. I may have a disease, but I will never let it slow me down and I support how you never let eplisey slow your daughter down.

[MizukiAnne3]

Oh I forgot to mention what I have to be carefull of everyday and why I worry about having a sezuire. I have to be in complete control of my emotions at all times becuase if I lose control and get really angry or upset I can go into a seizure. Also I have to watch how much caffine I have, make sure I get enough sleep, stay away from strobe lights, etc. I have many triggers that can cuase a seizure, but I'm always carefull and my family and friends are there to help me.

[MizukiAnne3]

(con) I may have a learning disability, eplipsey and understand things at a slower pace, but my diffculties in life have only made me stronger. These diffculties in life is why I'm studying to be a teacher becuase I want to prove to my students that life can knock you down, but you can chose whether or not to get back up. My point is that I wanted to say your an amazing family to help your daugther through life's problems. I hope one day she can show the world what she can do.

[MizukiAnne3]

(con.) When I was younger I was on the early form of seizure meds and they delyed my learning abilties to the point that I had to be special ed classes becuase I had a learning disability. Over the years life became better for me and my family, but I never stopped fighting to prove that I could do anything I set my mind to. For years teachers, consulers, etc said I would never be able to read, write, or calculate math at my age level. Now I'm in my forth year of college studying to be a teacher.

[MizukiAnne3]

You have a very beautiful daughter and I'm sorry to hear that your daughter has gotten worse. I have some idea what you go through becuase I was diagonosed with epilepsy when I was three or four years old. According to my parents I had a fever seizure and then these seizures devlepoed into petimal and now I live with Grand Maul epilepsy. I worry everyday when I wake up that I might go into a seizure that day. I'm on Keppra and that medication has been a godsend.

[ROCKSOLIDO]

hello, a few months ago my 2 years old, he began to give very convulsions of your peers when it awakens princeza only happen at that time. would you help me with information. thanks and god is great .. your princeza forward.

[gramattmom]

Sorry to hear that your beautiful daughter has gotten worse, will def. be praying for her and you and your whole family, may God be with you all...will keep up with the website,

[niseyg123]

Wow... this is an amazing video... I am in training to become a marriage and family therapist with a special interest in working with families like yourselves who have special needs children. I posted on another one of your vids. too. I have an 8 yr old w/Aspergers Syndrome, and a younger one with anxiety mood and now possible seizure issues. Nothing to the degree of your heather, but i see reminders of my 5 yr olds behavior in a lot of heathers. Thx for sharing your journey!