Shawn's Heart

Our son Shawn was born with Hypoplastic Left Heart Syndrome in August 1998. NOT diagnosed in utero, he was extremely sick when he underwent the first surgery, the Norwood. Now, post-Fontan, Shawn has been waiting for a heart transplant at Lucile Packard Children's Hospital at Stanford since April 14, 2006. As of this writing, we have been here - away from our home in Eagle River, Alaska for 2 years. Shawn is listed as a 1B status due to the Protein Losing Enteropathy after Fontan that he was diagnosed with in July 2003. shawn's progress....www.thestatus.com, patient: stockwell password: plum-vanilla **SHAWN RECEIVED HIS HEART TRANSPLANT JULY 31, 2008**

Category:

People & Blogs

Tags:

• Shawn
• Stockwell
• heart
• transplant
• Stanford
• Hypoplastic
• Left
• Heart
• Syndrome
• Eagle
• River
• Alaska
• CHD

[trudeaca]

Trista, I just saw this and I can hardly breathe! It's been really tough for me lately and seeing those photos of Shawn set to a song I know only too well was almost too hard to watch. I think it takes an extra special person to be a "heat mom"...I'm glad God thought we were special enough. I love you guys. Take care.

Celeste

[tristastockwell]

Celeste, I think of you, Jeff and John all the time. I miss you guys, and will miss you even more when we make it home to Alaska you aren't my neighbor :( as heartbreaking and unfair as the experience has been, I am so glad that our HLHS sons brought us togehter as friends. We love you guys...Trista

[bardamon]

Shawn is so wonderful and watching that video I saw so much compassion in him. You should be very proud of him. What a wonderful little boy you have, so strong and so happy.

[tristastockwell]

we are so, so proud of Shawn. He IS incredibly compassionate...he cares for other children here in the hospital so much. He is incredible, and he never complains...never. Thank you so much for your kind words...Shawn's Mom :-)

[123legoguns456]

GOD BLESS



[ethan2010ish]

Thank you for sharing your story of shawn. It gives me hope for my son who was born born on 1-5-10 with HLHS. He's 4mts old now and had his 2nd surgery the Glenn last week.

[americafenix]

my brother is 12 with HLHS. i wish Shawn and your family well! xxx

[isaaco14]

Wow! Shawn is a miracle! Thanks for sharing this! Couldn't stop crying. I have 6 boys and one that is same age as Shawn. My boys went to Alpenglow same year as Shawn. Each day I read your patient page and cry and am inspired to love and embrace my children more, and cherish the time we have together. God bless you Shawn, and your family! You are in my prayers every day!

[bardamon]

I just read in the Star that Shawn got his heart. I am so overjoyed right now. I pray for full recovery. I love your family and Shawn even though I have never met you all. Congratulations. Let Shawn know that even in Kansas we are praying for him.

[susaninak]

We in Alaska are overjoyed with the news that Shawn finally has a new heart. The courage and perseverance that he (and his entire family) has displayed is incredibly uplifting. May God continue to keep you all in His care. We can't wait for Shawn to come home! God bless ALL your hearts!

[chelsthornley]

This touched me. My brother was born with hypoplastic left heart as well. He has taught me so much, and I look up to him. The doctors said he would never live to be a teenager.... and here he is, still kickin at 15! Never lose hope, because that's all you've got. My brother is still waiting for a transplant, and I hope someday he will be as lucky as Shawn was. Thanks for the inspiration and hope.

[BradSRQ]

Congratulations on Shawn's new heart. May he have a quick recovery and grow up strong! Praise God!

[fernandogutierrezcam]

What a beautiful little boy, My son has hlhs, and also was air lifted to portland hospital, in 1994, He is now 14 yrs old, starting high school, and it has been an amazing roler coaster, He actually is doing very well, now maybe a transplant in the future, just not sure at this stage..Thanks for posting this video

[StarBeautiful]

Wow this is such a beautiful video. My brother also has HLHS. He went thru a lotas a child but now Thank God my brother is a healthy NORMAL 17 year old boy! He'll soon be 18 years old. He lives a perfectly normal and healthy life. There is always hope... God Bless you and your family.