Esther Crawley & SMILE Lightning Process

Esther Crawley's proposed SMILE Lightning Process trial is highly controversial. What does she really think about M.E/CFS a very serious disease? And what does she think about other research and XMRV.

Category:

People & Blogs

Tags:

• esther
• crawley
• CFS
• ME
• chronic
• fatigue
• syndrome
• myalgic
• encephalomyelitis
• WPI
• XMRV
• SMILE
• lightning
• process
• simon
• wessely
• CFS/ME
• ME/CFS

[JerichoPenguin]

More false statements from Dr Crawley - she wrote in the BMJ - "They said I was having an affair with a lightning practitioner, they doctored a video I appeared in, they reported me to the GMC. "

Nothing about this video was doctored. All clips are shown in their original context, including the repeated "money money money." Dr Crawley is putting children at risk of serious harm due to experimenting on them with the LP. A product that has been declared criminal by UK trading standards.

[JerichoPenguin]

For clarity, no one has ever said that Dr Crawley is having an affair with Alastair Gibson, (one of the Lightning Process practitioners involved in the trial.) However, hugging and kissing is intimate contact beyond that of a professional relationship, and a clear conflict of interest. Doctors must maintain a professional distance from both their patients, and especially trials involving commercial products where bias could result in erroneous conclusions, and thousands of children being harmed.

[JerichoPenguin]

Dr Crawley further claims in the BMJ article that children have a 94% recover rate from ME. If that statement was true

1. Why is Dr Crawley investigating this product when the expected recovery rate - in 6 months - according to her own words is 94%?

2.Can Dr Crawley not see the danger in that LP practitioners will claim a 94% recovery rate, albeit all those children would recover regardless?

These are the dangers of misdiagnosis unblinded "control groups" and bogus science.

[JerichoPenguin]

It has come to my attention that a Lightning Process vendor is trying to impersonate us by calling themselves "jerichopenguin1." They are posting misleading comments on the LP on the web, and uploading misleading videos to YouTube.

Such behaviour is vile and repugnant, please do not trust these people - this is the only place that you will find our comments.

[Saybooboy]

This is really great JP but is there any chance you could show the original video with out your edits?

I find the music over the top distracting because my brains shit :0)

[JerichoPenguin]

@Saybooboy sadly the original video is copyright so it cannot be uploaded, but there is a transcript on the internet. I'm sure someone you may know may have the original though and send it to you. Sorry about the music, it should have been quieter.

[Bluebottle83]

A doctor too ignorant to know the difference between chronic fatigue and the discrete neurological illness myalgic encephalomyelitis should not be working with children suffering from the latter.

[Bluebottle83]

The WPI should sue her for the lies she has deliberately told about them.

[CoraRora]

What is this about? WHat is SMILE Lightning Process, what is she pitching? If you did your video in a more informative manner with less distracting music it would maybe make more sense.

I do hope you are not trying to incriminate the Lighning Process though as I have done it and recovered from ME. It would be a shame if you scared people off about it and prevented them from the potential of getting better and living their lives fully.

[mercurialism]

The neck scratch at 3:06 when she starts to talk about XMRV is what body language experts (or poker players) refer to as a "tell". Seems like Creepy Crawly doesn't even believe her own BS.

[mercurialism]

Why is Creepy Crawly wearing a coat indoors to deliver a lecture? Is she suffering from false temperature beliefs perhaps??? I wonder ...

[Frogsquire]

@vespapete, Has Professor Hooper ever suffered abuse? Dr Julia Newton, Dr Leonard Jason, Dr Mikovits... Whilst no one condones abuse, the doctors claiming they have suffered abuse are only the very ones abusing patients. Claiming the illness is in their minds. Such dogma has abused millions, and even killed patients, desperate for real medical help. And indeed it is those psychiatrists that deter research, real doctors are being put off by the stigma of M.E, created by the psychiatrists.

[Frogsquire]

@vespapete, btw what I think it adds to the debate is the very heart of the problem with M.E. research. $Millions has been wasted on psychiatric research, GET, CBT, and now this - the con of all cons, The Lightning Process. A product that is called criminally illegal by Trading Standards in the UK.

A product that comprises standing on coloured squares and saying STOP, Im not "doing" illness, I'm a powerful genius, I will think happy thoughts. I'm glad this video has highlighted the issue.

[Frogsquire]

@vespapete, "selective reporting obsessive", as others have pointed out abuse is the weapon of the vulgar. I'm not sure you have read the comments on here properly. Everyone, including the poster of the video is calling for research. Proper research. Properly controlled research. On adults. Even Professor Robin Gill, expert in medical ethics has called Esther Crawley's study unethical. You have not put one specific cogent argument forward, when others have, you merely attack the poster.

[vespapete]

@JerichoPenguin This selectively edited 'amusing' nonsense adds nothing to the debate. In fact is significantly damages ME/CFS sufferers credibilty as sadly the public will lump all of us with you - a selective reporting obsessive who objects to anybody trying to do any research into areas that you personally believe are bad. I am grateful to any doctor or scientist who works with ill kids everyday and also contributes to the evidence base. Please don't deter researchers.