Dystonia and Parkinson's PSA

Christian Hoff, Tony Award Winner from Jersey Boys, teams up with The Bachmann-Strauss Foundation to speak out about a movement disorder known as Dystonia. Dystonia is a neurological muscle disorder that causes uncontrollable, painful spasms in one or more parts of the body and is not widely known. Dystonia affects more than 500,000 people in North America which is more than muscular dystrophy, Huntington's disease and Lou Gehrig's disease combined.

Innovative research is currently being conducted to lessen the painful effects of Dystonia, but more needs to be done. Getting more answers about Dystonia can possibly help uncover more about other movement disorders such Parkinson's Disease.

To learn more about Dystonia and how you can help go to http://www.dystonia-parkinsons.org/

Category:

Nonprofits & Activism

Tags:

• dystonia
• parkinson's
• disease
• parkinsons
• jersey
• boys
• broadway
• christain
• hoff
• movement
• disorders
• disorder

[Dottilicious]

I have Dystonia and personally, I find this video a little bit overly dramatic (especially that piano music).... Yes, Dystonia is horrible and yes, people should do what they can to help. But the video made me feel like having Dystonia makes you weak and pathetic and that is so not the case at all!!

[jstark069]

I feel for anyone with this disorder, let alone how rare it is. I almost wish I had MS. My 4 year old daughter helps me on a daily basis, which breaks my heart, because this came out of nowhere. Luckily, my right arm isn't much affect, so I can still paint and draw, otherwise, I would truely be lost. My heart goes out to all with this condition, and try to have good reliable people around you, because this is deffinately something you can not go at alone. I tried, and failed. Swallow your pride.

[sfinkx]

@Dottilicious that's the whole point. drama sells. you make people feel more sympathy and they donate more. if they showed a bunch of people with dystonia sitting around drinking coffee no one would think anything of it

[bellinghamken]

Please view my serious but hopefully humourous film about the cure for Parkinson’s. You might find it out of this world! In July 2011 received a commendation from the Mervyn Peake award competition organised annually by Parkinson’s UK.. It is called "IT HAPPENED ONE NIGHT...?". Just look under "bellinghamken”

[Masormy]

This ad is really bad. Small children for making everyone sad, like everywhere. The piano music, some "great" person, who speaks and some hope here and there.

[sahiba415]

hi i saw this video and i don't now what dystonia really is i now what Parkinson's and i now what Huntington's disease if you dont mind telling me what is it like having this disease and how do you now you have this disease please if dont mind i didnt wanted to affend you thanks :)

[1petelee]

Thank you for this video. (Cute girl!) Creating awareness among people who don't have dystonia is half the battle. Even most doctors are unable to properly diagnose it. I have cervical dystonia, and one way I fight back against public ignorance and medical misdiagnosis is by posting ads on craigslist and elsewhere as follows: Title: "Twisted neck with spasms and pain?" Text: "You may have Spasmodic Torticollis, also known as Cervical Dystonia. Visit (website address of national support group)."

[xxxAlphaxxx5]

to me that girl seems normal

[brittbo2006]

i find it ironic how they get ACTORS to do PSAs....

[toobaka]

@jemjean not me, my cup...  kthxbai

[jemjean]

@toobaka I did notice how empty you are and that's too bad because there's no fix for that. Good luck with that.