Walking on fire (Living with chronic pain) (HD) | A film by the Wellcome Trust

Many people live in persistent and often intense pain, referred to as chronic pain. Janet and Lucy, who are mother and daughter, have experienced chronic pain in their feet most of their adult lives.

In this film, they describe their pain, the ordeal of daily life, and we join them as they visit the clinic of Dr David Bennett, a member of the London Pain Consortium. During the visit, Dr Bennett reveals genetic insights into Janet's condition and takes further steps to identify whether the source of pain is the same for mother and daughter.

Category:

Science & Technology

Tags:

• Wellcome Trust
• London Pain Consortium
• LPC
• chronic pain
• pain
• erythermalgia
• sodium channel
• integrated research
• clinic
• hospital
• examination
• burning
• doctor
• genetics
• genes
• Nav1.7
• analgesia
• feet
• science
• research
• documentary
• film
• Key Stage 4
• Key Stage 5

[ashley060189]

I really appreciate this video. I was diagnosed with erythromelalgia (aka: EM) when I was seven years old (I'm 20 now), & I inherited it from my mother (who was born with it). It's really refreshing to see that I'm not alone in this.

[therealdealdoc]

How incredible that such a small genetic change can alter lives so much...

[krypekeeper]

@JohnnyX1239 stop drinking tap water

[krypekeeper]

have you tried cannabis?

[mrsbrunomars8]

I have EM, I am 14, and I was diagnosed a at least 3 or 4 years ago. No one in my family has this, I am the only one. It affects my everyday life.

[JohnnyX1239]

I have chronic fatigue syndrome..always tired and muscle cramps. Psychiatrists think I'm just crazy...Yea my life is so fucked up...

[JaedaBarbie]

I appreaciate this video, i live with chronic pain, i am losing my walking ability as well

[xSimplyAmusedx]

i have somatoform pain disorder, chronic pain in my feet so i understand what they are living with!

[clb877]

I have been diagnosed with EM and still struggle with the pain, despite being on medication. I hope to get the genetic test for this mutation some day soon. I want to have children, and if I do have the mutation, it will definitely effect my decision to have kids. I wish I could be one of those people who just has the normal problems in life, without any medical issues. For whatever reason, I have this disorder and will have to live with it for the rest of my life.

[LivingWithEDS]

I don't have erythromelalgia but I do have EDS and I understand being in pain and having people not believe you because you look fine to them. Its wonderful that they found this doctor that didn't turn them away.