He is so beautiful. When he smiles, his whole little face lights up, especially his eyes. They smile along with his mouth. I hope he gets all the help he needs for a strong and fulfilling life. God Bless.
@kaylovesmuzik and all signs point straight to Mitochondrial... I'm scared, but I want to know. I have always told her doctors from birth that something was 'wrong' but they just shrugged their shoulders and said, ''all children are different''..or ''it's growing pains''... I'm am grateful that I found a doctor 18 months ago that listened to me and ran some blood work and got the ball rolling.. and sent her to Duke. It is overwhelming. Very.
@kaylovesmuzik So we can't go any further.. we are 'stuck' ...I don't know what to do...Blue Cross Blue Shield of SC stinks... we give them 400 a month just for her, and the deductable is 5k, So when they are to pay, they say, ''not happening''. And they approved everything BEFORE we went to every doctor, ever test, etc. I don't know what to do. I picked her up from high school yesterday, and she had fallen again. I hurt when I look at her. I have researched this evil disease...
What a precious angel your son is. Brought tears to my eyes. We are in the process of Diagnoses of Mito with my daughter who is now 17, and it's hard because we have been to Duke 4 times last year (2010) and that is when I heard '' we think it's mitrochondrial disease" for the first time, but they want her to go to Atlanta to be diagosed... said they can't help her. Now with thousands we owe, our insurance wrote a letter saying , 'it's preexisting and we won't pay''.
Beautiful! I have a friend who lost her first little boy at age 3 1/2 to Alpers a form of Mito, now she is battling with it again with her second little boy, praying everyday for a cure... God Bless, and thanks for sharing I also have a video posted telling the story of her two little boys.
You take amazing pictures...
I want to draw every single one of them...if I could draw -.-
Of course, it helps to have such a beautiful little boy as the focus of your collection! :)
SquallyParkour 1 week ago
He is so beautiful. When he smiles, his whole little face lights up, especially his eyes. They smile along with his mouth. I hope he gets all the help he needs for a strong and fulfilling life. God Bless.
TheMinnie419 4 months ago 2
such a precious little boy
Fallothelederdwn 8 months ago
@kaylovesmuzik It is lonely out here all alone trying to fight a war that no one knows anything about.
Thank you for posting.
kaylovesmuzik 9 months ago
@kaylovesmuzik and all signs point straight to Mitochondrial... I'm scared, but I want to know. I have always told her doctors from birth that something was 'wrong' but they just shrugged their shoulders and said, ''all children are different''..or ''it's growing pains''... I'm am grateful that I found a doctor 18 months ago that listened to me and ran some blood work and got the ball rolling.. and sent her to Duke. It is overwhelming. Very.
kaylovesmuzik 9 months ago
@kaylovesmuzik So we can't go any further.. we are 'stuck' ...I don't know what to do...Blue Cross Blue Shield of SC stinks... we give them 400 a month just for her, and the deductable is 5k, So when they are to pay, they say, ''not happening''. And they approved everything BEFORE we went to every doctor, ever test, etc. I don't know what to do. I picked her up from high school yesterday, and she had fallen again. I hurt when I look at her. I have researched this evil disease...
kaylovesmuzik 9 months ago
What a precious angel your son is. Brought tears to my eyes. We are in the process of Diagnoses of Mito with my daughter who is now 17, and it's hard because we have been to Duke 4 times last year (2010) and that is when I heard '' we think it's mitrochondrial disease" for the first time, but they want her to go to Atlanta to be diagosed... said they can't help her. Now with thousands we owe, our insurance wrote a letter saying , 'it's preexisting and we won't pay''.
kaylovesmuzik 9 months ago
precious child.hugs,prayers,and hope for cure smiles :) :) :)
goldfeatherable 10 months ago
Beautiful! I have a friend who lost her first little boy at age 3 1/2 to Alpers a form of Mito, now she is battling with it again with her second little boy, praying everyday for a cure... God Bless, and thanks for sharing I also have a video posted telling the story of her two little boys.
esnidow 10 months ago
Omg he is beautiful!!!! I lost my son drew 12yrs ago to Leigh's disease!! This brought tears to my eyes!!
123melw 11 months ago