EB- Butterfly Children #1
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I have dermatitis on my feet and ears and I used to have it on my hands. Every once in awhile, I will lost a tiny bit of skin and it hurts really bad. I couldn't imagine how painful it would be to have EB and be missing so much skin. These kids are so brave and I wish they don't deserve this
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R.I.P. Corey Lee Coil 1992-2007
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@blazereef "Why not instead have a child without it?" These children deserve life. Even if they do live with pain, I'm sure they'd rather have the chance to live than to be terminated before birth simply because they are "flawed"
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when he says "I love you mom... so much." My eyes get wet D:
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im a butterfly child i have this skin disorder since birth until i was 3 yrs of age i went to the doctor every day but as i got older it decreased little by litle now im 16yrs old i dont get hurt much i still do.. i drive go to school and im happy cuz im begining to realize as u get older ur skin starts to get better and should eventually heal in a number amount of years iv never met anyone else with the disease other then my older sister but she gots it a little worse then i do
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blazereef you miss the point .. these children were born to different parents, this strong woman and her mother who has passed took on the challenge out of love, without these people these children's lives would be what? I am sure this woman gets rewards you just could not imagine. ...
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@caferoyale123 why not instead have a child without it?
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@limbdarkening that's kind of an ignorant comment, don't you think? Some of these children are the most beautiful people you will ever meet, outside and on the inside. Every case is different. Some have a horrible quality of life, and others have a relatively good quality of life. But they all teach us - their caregivers, families, and friends something new about strength and courage.
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this is not fair. he doesn't deserve it :(
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What a remarkable family. I pray that a cure is found soon. x
3:44
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I'm crying right now, I hope someone finds a cure!
sunlovinggirl 4 years ago 11