I have CVS

Open your eyes to Cyclic Vomiting Syndrome. It is not fun. Too often do I get asked if I'm bulimic or something else, and I thought it'd be nice to help people understand, and if there are others out there who were like me and just dying for a diagnosis, i'd like to help. So this is my story.

Category:

Education

Tags:

• CVS
• cyclic
• vomiting
• syndrome
• sick
• disease
• misdiagnosis
• digestive
• system
• diagnosis
• my
• story
• life
• throwing
• up
• vomit
• migraine
• abdominal
• cramps
• menstruation
• trigger
• miserable
• pain
• illness
• doctor
• symptoms
• hospital
• intravenous
• fluids
• IV
• lethargic
• nausea
• yt3d:metadata=user

[BAbSkO13]

Hi my name is Natalyn! I also was diagnosed with CVS. This video is very inspiring! Considering I feel Nautious everyday, no exaggerating, I feel like just giving up sometimes. But knowing I'm not alone... Helps me a lot. Thanks!

[alexxvdezzy]

@BAbSkO13 Thanks for commenting Natalyn :) I'm glad it helped,, i definitely feels a little better knowing we aren't crazy lol. There's definitely quite a few people who know how we feel. If you ever need someone to talk to, you can always send me a message! Stay strong!

[bestfriend7654ily]

Hi I've had cvs since I was 6 I'm 14 now and I was watching your video and I started crying. It was so strange cuz I didn't find out about it until I was 11 and the doctors said the same thing its probally just a stomach bug. I just wanted to say Thank you so much for making this video cuz now I believe CVS isn't really me. So Thank you.(:

[alexxvdezzy]

@bestfriend7654ily You are very welcome! I'm so glad it helped :)

[TROYHARDCORE1231]

keep positive and never let anyone tell you you can't do something. I've had CVS since 1993 and get sick 7-10 days a month. However, 20-23 days a month I'm out kayaking, snowboarding and enjoying life. It's not about what you can't do, it's all about what you can do. Nice video, it's an informative piece that I will share with others, thanks!

[alexxvdezzy]

@TROYHARDCORE1231 This is what I like to hear from people :) It's good to see people dealing with things like this who don't let it take over their lives and are actually living it to the fullest whenever they can.. keep it up! Thank you!

[thehappymower]

I have CVS, was recently told in Oct. that this is what was going on with me. I have been in and out of the hospital the past 7 months been hospitalized 3 times. I am 24 and been dealing with this for a long time. I was told that it was all in my head that there is nothing wrong with me since every single test (I have had every test you can think of done) came back normal.

[1007wifey]

OMG ... That was beautiful I am full of tears right now. My daughter had been going thru this since she was 6 now she's 21, searching thru the Internet has saved her life..... Thank you u give her hope!!!' Shes n the hospital as we speak! Q

[BonnKKeRRzzEditinG]

Ive had CVS for years now going on 3 and a half actually. Have you been on topomax,topiramate, or anything like that? cause im a15 yr old boy, so of course mine is not triggered by menstruation. But its nice to see that im not crazy, and that i got made fun of for nothing, :D

[jen23hen]

Thank u kindly for sharing. Been 3 yr struggle for me. Just a relief to actually know what our condition is.

[ciccioboston]

Your video is great and you are darling! My son, Noah is 2-1/2 and has just formally been diagnosed with CVS. He started at about 18 months!!!!! Your video made me cry because as his mom, we've been through so much as you can imagine. Keep up such a positive attitude and I pray for you and my son that they will find a cure!!!

[ALoveForOrcas]

I was diagnosed with cvs when i was 2 and i still get them at 16, mine is a little bit more unusual. I go to the hospital everytime and its doctor's orders, and i get the 2nd strongest pain meds known to science, my veins are all used up its hard to get blood draws i have a port but that has its disadvantages. My doctor said (im telling the truth here) im the worst case with cvs he had ever seen. Which was like great,lucky me :/ I lose 5lbs in a single day. im in the hospital for 4 days sucks.