Cognitive Dysfunction In ME/CFS

In this video I talk about the cognitive problems I and many others with M.E. experience. This is an invisible part of the illness, and can be quite difficult to explain and difficult for those who are not affected to understand. This is my attempt at explaining it, at least as I experience it.

Category:

People & Blogs

Tags:

• me/cfs
• myalgic encephalomylitis
• cfids
• cognitive problems
• cognition
• neurological illness
• neuropsychology

[sly1958]

I really would seek to have a urinary neurotransmitter test..I honestly think the results would be very illuminating and help explain some of the movement disorders you and many others experience.Don't bank on having one via the NHS though, your diagnosis has already in my view put paid to that.

[neelubird]

Excellent vid as always. One time I went to a cafe to have tea with some FF people. One of them asked "should we order tea and snacks first or sit down first?" and I looked at her as if it were a quantum physics question so went with my usual copout of "it's up to you" cos' I just wasn't 'with it' enough to even know what response to give to a small matter like that.

[lukeclarke2006]

one thing thats the most destructive for me is its effected my personality, im not who i used to be anymore or cant be, which makes my existance feel not worth living anymore an extremely depressin

[lukeclarke2006]

@DiamonDie hey diamondie id rely like to speak to you! if u cud tell me how u treated ur cognitive dysfuntion. itd be great if u cud message me cheers

[lukeclarke2006]

@CherylSpeaksOut this is wot gets me, here you seem to have formed ur words pretty well here? lol or is this because this is a good day? an youve had time to run over an revise before youve hit the enter key? cus that makes me feel like well if thats bad then i must be severe :S lol

[lukeclarke2006]

@deadgirldreaming completely agree, i cant speak/ write proper sentences unless my brain function is working. it wil get me frustrated beacuse it wont sound right, i know in myself underneaeth i can put things into better words, in this state tho ill jus give up, shut off from everything, isolate myslef untill it goes away, i dont like it cus its not me, there not my words i wudnt normally speak like a spastic so it makes me feel non confident an vulnerable

[DysautonomiaMD]

Thank you so much for sharing your life with us. I love you and I miss you.

[DysautonomiaMD]

God Bless You for all you do.

[neelubird]

.I've had brainfog most of my life but within a month or two of switching to a gluten free low dairy diet and staying away from other 'trigger foods', most of the memory and cognition problems cleared up and suddenly people were impressed by my organisational skills- something that was previously a weak point.

[deadgirldreaming]

It's like having a form of brain damage - I can't consolidate new memories. I chose a film and can't remember anything about it when my bloke tells me we watched it a couple of weeks ago.

i was wanting to do a Phd at one time and now can't imagine being able to write a 1st year OU essay.

With the 'fatigue' and bodily intrusions it is impossible to experince 'flow' - I find that is needed for creative work and for engaging in conversation.

My brain just shuts down.

[2ladybughippies]

I look forward to your posts. Great job explaining this. Take care and thank you