Multiple Sclerosis: Rebif NOT WORKING. Tysabri PERSCRIBED instead!(Year 1, Episode 11 - jrmcg1)

John visits one of the best--if not THE best--MS doctors in NYC/USA. After a 2-hour session with exam and MRI review, the Doctor concludes that Rebif seems to NOT BE WORKING! He then schedules another apointment with me and my family--doesn't tell me what we are going to talk about--but I get a TYSABRI packet in the mail. I guess the suprise has been spoiled. ANYONE ON TYSABRI OUT THERE?? How's it going??

Category:

People & Blogs

Tags:

• tysabri
• multiple sclerosis
• PML

[jrmcg1]

Hey everyone, I am taking the Tysabri because my Doctor said it's the best course of action in my case.

[5lovejs]

Hi I was diagnosed with M.S. at age 12 and now I'm 20. So for almost 8 yrs I have been suffering from M.S. and the pain from the Rebif shots, it is the only medication I have taken but now doctor is say's that it's not working so I'll be taking Tysabri very soon. Wish Me Luck!!

[Andrea0414D]

I have been taking Tysabri since last May '10 and its so much better than shots. Rebif was what I took until a doctor at the Cleveland Clinic believed Tysabri would be the best DMD for me. I was diagnosed with MS 5 years ago and will try anything because it is so early on. My boyfriend has MS as well & Tysabri was not around for him when he was diagnosed. Stick with it and see if it helps you. Good luck and God Speed.

AndreaD

[ThePennygirl]

You told healthy people have a slim chance of PML? That statement holds no grounds! Having MS takes you off the list of being a healthy person, Tysabri nearly killed meI I was one of the lucky!!! My severe reaction was caught during an infusion next to the hospital! Why are you just settling for the MOST life THREATING drug out there for MS?

Am taking LDN and doing fine and filling why better, and most of all not worried about PML! Good Luck

[jbaileyl]

Please consider being screened for CCSVI. Before you do the Tysabri! You will be amazed.

[spazticfugliness]

I'm 24 and was diagnosed with MS at 18. I see a brilliant neurologist here in tx. He recommends copaxone for me. Although it's a daily shot, it's painless compared to avonex and rebif. The only problem with everything for me now is that I no longer have insurance and can't afford my injections and I'm currently beginning to have yet another relapse. These are pretty pricey meds!

Anywho, when I first brought up tysabri to my neurologist, he told me about PML, Progressive multifocal leukoencep

[tubegirl41]

My son had MS and I am waiting to find out if I do. I am so sorry that you have this disease. I am hoping you do well with whatever you take on and that you have family and friends to help you endure.

[Pelagaia]

Sorry to hear that your meds are not working for you. All I have heard about Tysabri is great. Check out laurenvparrott channel. She has alot of great info on tysabri that she talks about.

[whyworryabout2moro]

Good luck with the tysabri John xx