Please visit www.evanstauff.com. This is the first type of seizure that we noticed on April 1, 2010 that started everything. Evan had about 3 seizures already prior to catching this one on video, that morning. We had no idea that Evan was having infantile spasms at this point. This is was the beginning of what we never imagined would happen to our baby.
Leeloopug......DO NOT GIVE UP! I don't know why this is the way it is.....its like they get trained in med school to discount parents and shrug us off. I experienced the same thing and I'm an RN....didn't matter. They tried to downplay what was going on. Turns out my twins have a very rare and catastrophic form of epilepsy (Dravet Syndrome) that takes an avg of 7 years to receive diagnosis. Our early diagnosis will hopefully improve outcome. Also...VIDEOTAPE what you see! Good Luck!
DravetDuo 4 days ago
My baby has had 2 episodes like this now. One just about an hour ago! We had already taken him to the doctors and they said he was fine! But it's really scary! If it happens again I'm going to take him to the hospital! I don't care if they think I'm over reacting!
leeloopug 6 days ago
this is heartbreaking, I'm so sorry you have to go trough this little buddy. :(
duvraisirop 1 week ago
Gee, I hope he's alright...
lu4y4pants 3 weeks ago
how is evan now? West syndrome maybe??
misswilline 2 months ago
omg dat poor baby :(
Kw33nBiitch 3 months ago
My little sister had a seizure a couple of nights ago, She's 10, I walked in on her Having one, She stopped breathing, i couldn't stop cryinng It;s been like 2 weeks after her seizure and i still can't sleep,i stay up and watch her all night, and sleep through the day, i hate it
JustChannel20 5 months ago
why does this happen'd? i'm so afraid for my nephews 3 month old son, he gets the same kind of seizures except he gets blue and cant breath and his whole lil body stretches like when an animal is dying no disrespect but that is the only way i can describe it i'm scared for them i thought we almost lost him.
chola4444 6 months ago