Re: How to rebuild a life

finally, response to Stacy about dealing with chronic illness.

Category:

People & Blogs

Tags:

• chronic
• illness
• vlog
• response
• anewyorkminute

[TheMrsrick]

I just heard from you what I have been fighting to express. My husband doesnt get why I say its hard to hope. I have POTS, and it's not your struggle, but the feelings are the same. I would give anything to know that I would be able to wake, and live a day without this struggle! But I can't. For all I can see, I will likely have these symptoms for years, if not the rest of my life. Its so hard to see hope, and you explained that so well! Thank you so much for sharing!

[peterpauliepan]

@TheMrsrick I'm glad that my video could help you in some way, I just try to share my life and my struggle in hopes that people can relate or learn from it. hope is a very hard thing to hold on to with chronic illness but when you have it, it makes all things seem possible. i just try to live in the moment and enjoy the life that i have and the people and things that i love. i'm not perfect, i have shitty days and bad moods but i fight to not let life pass my by, no matter what.

[Holl6y]

I am a nursing student and I am presenting on Chronic Illness and I am wondering if you would be okay with me sharing your video with my class. You provide an amazing opportunity for others to peak into the world of a person with a chronic illness. I think that is important for people to see, especially if they are going to be in the health care profession. You are a wonderful example to many people. Thank you for posting this video. Holly

[peterpauliepan]

Not a problem, thank you so much for asking. I hope that my once voice can represent the many many people that suffer each day. Thank you for wanting and learning to go into medicine, we need more or you people around. Thanks.

[Mum2Ana]

You have probably heard it all... and I respectfully ask if you have tried an all protein diet? I have read a lot of success stories with Fibro and a high protein diet... apologies if you know this already, I am moved and touch by your vid, my love and thoughts, gloria

[peterpauliepan]

yes, and many times. tried but with little success, it did a number on my digestive system and did not increase my energy. I eat a lot of protein and try to steer clear of caffeine and sugar, even though my body craves carbs and sugar. Thank you for the suggestion.

[wishing4miricles]

I know what you are going through and I'm sorry you are suffering too. I have had chronic pain since 2007 when I had a shoulder surgery that went wrong. They can not figure out what is wrong with me and I too have undergone hundreds of tests. It is so frustrating but I force myself to remember how far they have come treating other diseases and pray that one day they will have an answer for pain too. Most importantly don't lose hope

[vonhatenfeld]

check your clothes in the laboratory, you may be exposed to drugs through your clothes

[xtheatrechic19x]

Omg i feel the same way when it comes to seizures. Some day's Im proactive about my life but then other days i feel like life isn't even worth waking up for. Mind blowing that im not the only one. I keep trying to explain to my bf and he just thinks im lazy but im not...

[CutTheFat]

The way you told this was amazing, your very well-spoken, and I can't believe that your around my age. Please keep your head up, I wish I had something to say to help. Best of Luck..

[peterpauliepan]

You are a wonderful person, with so much hope inside you despite your situation. I hope to continue to stay in contact with you and I wish you the best, despite how bad life seems.