Rhyann Retinoblastoma and 13q deletion syndrome

Rhyann has a rare chromosome deletion called 13q deletion syndrome, this has resulted in Rhyann having cancer in both eyes, epilepsy, developmental delay, among other health issues.

Category:

People & Blogs

Tags:

• Retinoblastoma
• child
• cancer
• epilepsy
• syndrome
• 13q
• deletion

[socaxle]

I am 35 years old in Canada and year ago I was told that i have the Ring 13q34 since I born.

[coralb83]

i also understand what u are going through, my 14 month old son just just been diognosed with deletion 13 q and has got cancer in his eye he starts treatment on wednesday, so its still all pretty new to us.

[khaba90]

im in south africa and we rarely have such, i wish you a very goog luck on your therapy and God be with you

[birds16ful]

Your daughter Rhyann is a blessing to your family. Rryann is a bless to hhave Retinoblastoma as a disability & plus I have a disability it is Hemiplegia Cerebral Palsy & I am 16 years old.

Love Michaela

[goaskalice83]

shes so cute, my daughter has some rare disorder we still dont have any answers i feel ur pain children shoulnt have to b sick

[eniemeenie]

A beautiful child. My son has Monosomy 13q deletion/ring chromosome disorder.

[Aiwe78]

He's a lovely boy! My daughter was diagnosed with deletion 13q, she also suffers from various kinds of health issues, so I know what you are going through.

Best wishes from Sweden