Doris Razo, Systemic Scleroderma
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Hello Doris, my name is Stephanie and I'm 28 years old. I am a daughter of a mother who had Scleroderma. I've left you comments on your profile page. Hope they provide hope for you and others. God bless!
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@rubi7ros, I kept tryin to post an outline of the stem cell transplant process, from health requisites, interviews, insurance authorizations, etc but kept getting an error code. I sent you a message instead. Best wishes.
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my sister has this. what do u mean transplant??? can u tell me more about this "transplant". did it really help u out??
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i have this disease. i am not coping well with it like you are so, good on you girl.
pregnantnproud 7 months ago
@pregnantnproud, Sorry to hear you have scleroderma. It's hard for anyone to accept this disease into their life and try to maintain some level of normalcy. I do have my "Why me" days and it's okay to mope and give in to it for a while. If you are dealing with pain, then I would see a doctor right away to get that under control. Support groups and family can be very helpful. I've found that the world goes on with or without me, so I try to put my best foot forward. God bless you. :)
razzberry7 7 months ago
My mom had scleroderma too, and we also lived in Chicago when she had gotten it. The cold weather is not too good for that rare disease. Anyways, i hope you the best because you seem to be a really strong and positive person. Never change your attitude!
katkal3 7 months ago
@katkal3,
Thanks katkal3 for your encouragement. On a daily basis I remind myself to stay positive and strong which can be hard with this disease. Chicago's winters are harsh and extremely cold. I dread the ice, snow and wind. Brrrrr. I keep saying "I need to move to a warmer climate!" I'm sorry to hear ur mom had scleroderma. I wish you and your family peace and happiness always.
razzberry7 7 months ago