Its with great sadness that i tell you all that Jack passed way last year. God rest his soul. A great man who dedicated his life to helping people with CADASIL
My name is Sarah, I am the daughter & granddaugher of Denise & Richard. I would like to let you know that unfortunately mum died in June 2007 aged 44 & granddad died Jan 2010 aged 67. They both suffered badly with the effects of CADASIL and although this was not the cause of their deaths it was the main contributing factor. I would like to thank Jack, Profesor Kalaria and everyone who is working to help with CADASIL.
His greatest gift has been L-Arginine. This is truly a life saver. I was taking the medically prescribed dosage of 2 but now im upto 4 pills a day and will see how this works. Over 5,000 mg of L-arginine. It's been 2 days and not one headache nor anything for that matter. I shall continue with the 4 pills and of course my medicinal marijuana. I feel truly wonderful now.
Two of my sisters have been diagnosed with CADASIL and although he was never diagnosed with it in all likely hood the genetic mutation was passed to them through our father who had a stroke at age 46 and died at age 62. His mother also died after multiple strokes in her sixities. I have tested negative for the gene, but I have six siblings that have not been tested. I thank Jack Shields on behalf of my family for his efforts.
I feel so bad for Richard. I am doing research on this disease. I would love to become a physican to study and find cures for these neurological disorders. :(
I am now 39 years old and have had 4 Strokes now having Cadasil, Marijuana has allowed me to continue my life mildly affected by the strokes. Marijuana is a medicine and it has been proven Non Cancerous and is also Non Toxic. Just make sure you Lose weight and excersise and of course eat your vegetables. 4 Strokes and i feel wonderful.
@Casuality07 Best of luck to you all xx
lindaIreland1 1 day ago
Its with great sadness that i tell you all that Jack passed way last year. God rest his soul. A great man who dedicated his life to helping people with CADASIL
lindaIreland1 1 day ago
My sister just got diagnosed with cadasil she is 26. my family is getting tested within this week :(
Casuality07 3 months ago
My name is Sarah, I am the daughter & granddaugher of Denise & Richard. I would like to let you know that unfortunately mum died in June 2007 aged 44 & granddad died Jan 2010 aged 67. They both suffered badly with the effects of CADASIL and although this was not the cause of their deaths it was the main contributing factor. I would like to thank Jack, Profesor Kalaria and everyone who is working to help with CADASIL.
sarahlouchat 9 months ago
His greatest gift has been L-Arginine. This is truly a life saver. I was taking the medically prescribed dosage of 2 but now im upto 4 pills a day and will see how this works. Over 5,000 mg of L-arginine. It's been 2 days and not one headache nor anything for that matter. I shall continue with the 4 pills and of course my medicinal marijuana. I feel truly wonderful now.
HAAKONAS 1 year ago
Two of my sisters have been diagnosed with CADASIL and although he was never diagnosed with it in all likely hood the genetic mutation was passed to them through our father who had a stroke at age 46 and died at age 62. His mother also died after multiple strokes in her sixities. I have tested negative for the gene, but I have six siblings that have not been tested. I thank Jack Shields on behalf of my family for his efforts.
belleileen 1 year ago
I feel so bad for Richard. I am doing research on this disease. I would love to become a physican to study and find cures for these neurological disorders. :(
lindsey47646 1 year ago
I am now 39 years old and have had 4 Strokes now having Cadasil, Marijuana has allowed me to continue my life mildly affected by the strokes. Marijuana is a medicine and it has been proven Non Cancerous and is also Non Toxic. Just make sure you Lose weight and excersise and of course eat your vegetables. 4 Strokes and i feel wonderful.
HAAKONAS 1 year ago
Oh no you do not have to smoke it. You can cook with it. I cook with it and also use a Vaporizer.
HAAKONAS 1 year ago
i have cadasil we have good board on facebook. the site with the most mnebers meet us there. i dont wisht o smoke weed but its cool that it helps.
sgrm000 1 year ago