Myelofibrosis-Mayo Clinic

Thank you again for this video. I hope you can do these from time to time to update us all on any new developments. I went to the MPD Patient Symposium, but as a 44 year old relatively recent MF patient, its all so just confusing, and this video truly clarified so many things in my head. So can you please update when warranted?

Thanks,

David Finkelstein and all other MF patients aroudn the world

Dr Mesa, thankyou for this post it has helped me and my family understand my condition much more. I am 38 and my consultant here in the UK recently contacted you about my case, I am about to start treatment soon. The information you give has helped my parents understand as they didnt understand and were very worried.
Its also good to "see" you after hearing so much about you. Thankyou for setting me off on my journey - I hope I make it to the end!

Thank you Dr Mesa for creating this video. I too have Myelofibrosis. Diagnosed Sept 2006. I was in a study at MD Anderson with Dr. V. It was not successful for me, but I will not give up. I have done well since the study 2 years ago till now. My platelet count has been dropping to 40's and 50's so I will be going back to Anderson soon to investigate another study. Your video has put so much information into a format that I think most could understand that has no idea what the diease is.

Thank you for this Dr Mesa. I have read a lot about the Mayo Clinic. We are in UK and my 38 year old husband was diagnosed 18 months ago. No treatment yet, we hope the progression is very slow and that his age will stand him in good stead. Wait and see approach so far from the hospital. We hope a cure is found soon.

Thank you for explaining MF so our family and friends understand what it is.

Thank you so much, Dr. Mesa! I'm glad that you mentioned the itching because I haven't seen this symptom anywhere else and I have itching with my CIMF; I thought it was just in my head. I really appreciate you taking the time to explain this disease.

Thank you! This explanation has helped a lot and the beauty of it is that I can come back and listen to it again should I forget something you've said or a new development occurs.

I now have a better understanding of the drugs they are testing.