Intracranial Hypertension VP Shunt Surgery

http://www.firstgiving.com/nikkigalagher I have Intracranial hypertension- a brain disease that has no cause and no Cure YET... help me raise awareness and together we can find a cure... visit my donations page and share this video with your loved ones and your Doctors...

Some symptoms -
Numb toes, feet and fingers while lying in bed. Pins and needles as well.
Pressure behind eyes, eyes tearing.
Visual disturbances.
Feeling of pressure in head, feels like my brain is being squashed
Forgetting words, little one's like pen.
Loss of short-term memory - what I am doing, where am I?
Vertigo, loss of balance with eyes shut.
Tailbone aches for hours/days.
Back of neck aches.
Headache, 24 hours a day.
Migraines on a regular basis.
Double vision
Thrumming noise in ears (actually the sound of my own heartbeat).
Lethargy that lasted months.
Visual blackout that lasts several seconds after standing up.
Dizziness on standing/squatting.
Eyelid twitching, small mini seizures involving arm, leg or head movement.
Dry mouth.
Water retention - fat , sore feet
Weight gain.
Night blindness.
Non-thought, when you try to think through a head full of cotton wool.
Feeling of disorientation/confusion.

If you have more than 3 of these Symptoms please see your Doctor and ask for a refferal to see a Neurologist (study's the brain) or ophthalmologist (who will be able to look into your eyes and see the pressure on your optic nerves). The only way that IH can be ditected is from a lumber Puncture the needle in your spine is hooked up to a tube and is held vertical and the pressuse from the fluid will rise the fluid up the tube giving you a pressure reading. normal is 5-10 my first reading was 28 (3 times normal levels) and has been as high as 48.
If your doctor is not aware of this disease and is dismissing your symptoms see another Dr.. this is your body and you must take charge of it.

Category:

People & Blogs

Tags:

• intracranial
• hypertension
• BIH
• IH
• VP
• shunt
• brain
• surgery

[miner2197]

my vp shunt got put in 10 minitets later it blocked and i got a slight brain hemrige now im fine

[nikkiblu78]

@miner2197 thank goodness your better.

[TheJurster]

part 2 of what i was saying thats scary that wrapped around your heart!i have previous heart issues already so i can imagine that happening being pretty scary!can you tell me how the recovery and stuff is and the sizo of the scar and stuff with a vp shunt?my neurousrgeon is thinking most likely that i need a shunt and im scared and he would do a vp shunt!how was the pain after surgrey?how long were you in hospital after surgrey?sorry for all the questions.im just curious because im prob getting

[nikkiblu78]

@TheJurster my head scar is covered up with my hair .. so can hardly see it .. and by belly scar is about 3 cms long.. the pain after surgery is more tender pain than sore, you will have a stiff neck for a few weeks and have a numb tingling feeling on your head as they cut nerves .. i was up and about walking the same day (slowly of course) but some take a few weeks to get back to their normal self ... just listen to your body ..

[nikkiblu78]

i was in hospital for 5 days with my first 3 surgeries and 2 days with my last one.

[chelscole]

beautiful video

[ChiversVinny]

I hear the sound of my heart when i'm laying down, It's almost like a drum brat going on in my head, I've had this for as long as I can remember, I just seen it on the list, along with others such as the standing up thing and short term memory loss, I always have a headache and a pain in my eye sockets...

[ChiversVinny]

When i stand up after a while of sitting or laying I blank out and go into a zombie-like state, sometimes I stumble and go down gently but I loose sight and control over my movements for a few secconds, and sometimes like just two minuites ago I just fall straight to the ground, anybody know what I can do? Doctors have said thay they don't know what's wrong... ".

[cindynur]

I'm getting my VP shunt on Feb 16. I was diagnosed with IH in Jan, and have not had any relief with any medications. I'm super scared!

[tomboy9]

i have IIH it took a year and a half for the hospital to go with a vp shunt and its causing me problems so they got to move the catheter but i seem to have gained weight which is weird as i aint been eating much as i feel sick any one else had this weird issue lol

[TheJurster]

@nikkiblu78 thanks for the comment back my neurosurgeon has decided to do a vp shunt on me im scared but it will all be ok.could you inbox me a little more about a vp shunt i dot know much and feel lost entering into somthing i dont know much about.