Feeding Tube

Winter helping Tori set up her feed at night. Winter loves helping Tori at night. Tori had her g-tube placed on March 2006. After working with doses and settings, Tori gets 1000 calories at 75ml and hour.

Category:

Education

Tags:

• cf
• cystic
• fibrosis
• winter
• and
• tori
• feeding
• tube
• mickey
• button

[pepsiann]

You have been so richly blessed to have children who truly love eachother so much. God Bless

[krystalmike1999]

@pepsiann Thank you

[TheBne123456]

Winter your such a wonderful older sister to Tori .Your family must be soo proud of you .I can relate to what your family is going through .I know what it's like to help care for a siblings with a chronic illness .I used to help care for my sister until she passed away last summer.Over the course of 5 years I helped my mom care for my older sister .My sister had a j- tube she was on a feeding tube 24 hours per day  . I wish you and your family the best .Tori honey I hope you get better soon.

[krystalmike1999]

@TheBne123456 Thank you from Winter. We are sorry for the passing of your sister.

[luvlissy]

I'm 14 Nd I have cf my drs wanted me to have the tube but. We found out any boost plus there is 360caleries per bottle and I just drink 3-4 of them a day it's wayy better than the tube I never wanted that so to anyone I highly suggest that u will see a difference after te 1st month-3

[krystalmike1999]

@luvlissy Thank you for your suggestion. Tori's feeds are usually only at night so they do not interfer with her life during the day. And we actually like the tube because it is not forcing her to drink or eat all the calories she has to have in order to gain weight.

[silentfades]

@krystalmike1999 hello

you are great doing all of this

have you considered hyperalimentation ?

[krystalmike1999]

Respond to this video... 

[krystalmike1999]

@Appleipodzrulez Tori's lung function is ok right now but thank you for your suggestions

[krystalmike1999]

@xxKiWishufflexx Tori has a port-a-cath now too.. any tips on things not getting tangled?