Spinal Muscular Atrophy Awareness
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Uploaded by Orchid11nx on Aug 29, 2011
***For more information or if you would like to donate to this cause you can do so at curesma.org.*** Our Xamara was diagnosed with SMA II late Aug. 2010 when she was 11 months old. We noticed the weakness since she was 4 months old, so at first the doctors said she was SMA type I, but because she is slowly getting stronger and has no problem breathing and swallowing on her own they changed her to SMA type II. She also has this little tremor on her hands which I read in an SMA website is a key characteristic to a child with SMA II. At this time she still has a hard time holding her head up and can't sit unassisted. Xamara is a normal little girl who loves to swim, adores Elmo and Abby, and enjoys playing with her big sister. She is such a sweetheart and is very good with her manners. We try to spread awareness of SMA and pray for all the little SMA warriors and pray the cure is discovered soon.
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Uploader Comments (Orchid11nx)
All Comments (4)
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Thank you for sharing this very touching video.
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Thank you for sharing this touching video, all the best to your little princess and your family. My daughter died three weeks ago because of SMARD, spinal muscular atrophy respiratory distres, very severe and rare disease. She was one day after her first birthday. Hope every mother like us will be stronger and tougher. Lets pray together. Love. Miss you Alicia....
chloe365 1 month ago
@chloe365 Thank you for the best wishes. I'm sorry to hear about your little angel. I have seen videos on SMARD... it just breaks my heart to hear about all the little warriors who lose the battle against these terrible diseases. You must now treasure the memories of the time you spent with your little baby. I too pray for strength not only for me but for all the parents going through this difficult journey and to those who went through it and are now mourning their child's passing.
Orchid11nx 1 month ago
You are welcome. Thank you for taking the time to watch. Feel free to share the video, we sure need to make others aware of this terrible disease. God bless.
Orchid11nx 4 months ago