Kai's Seizure Video Diary
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Uploaded by themeaningofkai on Mar 30, 2010
This is the first in the Video Diary of Kai Allen to journal his struggle with Reflex Anoxic Seizures and associated issues.
It started with what seemed to be breath holding spells for around 4 weeks, gradually increasing in intensity and frequency (upwards of 3 per day) over the week previous to 24-11-09.
On the morning of the 24th he had his usual spell and was lying face down on the floor, at the end before he would usually go limp, there were a few seconds of bilateral clonic movements and jerky head movements. At that time I rang my husband at work and arranged to take Kai to the doctor that afternoon to get him checked out. As my oldest had simple breath holding spells I had just thought it was the same thing, with hindsight and after that morning I realised they might never have been as simple as that.
Around 5pm he again had a spell and I picked him up before he would usually go limp, again instead of going limp the bilateral clonic movements began but this time they didnt stop.
Read more at http://themeaningofkai.com
Please visit his website and share this video or his website with friends and family.
We need more public awareness and community and medical support.
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I would love to visit the website, but my computer says it could be harmful (it contains something w/ malware)...
kyleighsmommy09 2 weeks ago in playlist Uploaded videos
I don't know what I would do if my kid ever has to go through this. I wouldn't not be able to be as calm as you. I have watched the majority of kai's videos so I am aware. I suffer from seizures as well and am terrified I will passed it to my kid. I don't know what causes mine though. Luckily I have my fiance there for me.
ElvenLovePro 4 weeks ago
wow this is so sad :( you are such an amazing family
BigDolphinLover30 1 month ago
I have no words for this. You are an AMAZING family. I hope his life gets better!
DavidEpilepsy 2 months ago
Parents like these are the real world heros. People like this are gifts to humanity. I pray you all will see and end to these heartbreaking episodes:( Our son has suffered thru similiar episodes for nearly 2 yrs. It makes parents feel hopeless, and helpless:( You are the real heros. God bless.
TheTruthPastor 3 months ago
I think its someone else.
Esseeja 5 months ago
Or am i someone else
Esseeja 6 months ago
That i hit my poor face now im 8. WARNING. i know it was made 2010. but it was me at 2002
Esseeja 6 months ago
That was me
Esseeja 6 months ago
your story has me in tears. he is so beautiful and it just isnt fair for such an innocent baby to go through something like this. hope you guys are doing well.
lustieblueyes 7 months ago