Ethan Journey with HLHS

Ethan.A.Hernandez was born on July 24,2008 and was
diagnosed with Hypoplastic Left Heart Syndrome and Hydronephrosis
We made this montage to share our experience with other HLHS parents,
Ethan had his norwood procedure at 2 weeks of age and the glenn procedure
at 8 months of age and is pending the fontan.He is truly a blessing to our family. ETHAN- means strong and optimistic, solid and enduring, or permanent.

Category:

People & Blogs

Tags:

• HLHS
• Congenital Heart Defects
• single ventricle

[MrBigrobmjca3]

God is up there and answers prayers. By the grace of God, I'm a 22 year old male, living with HLHS. I've had the Norwood, Glen, I believe an attempted Fontan, and a sucessful Fontan. One thing confuses me, I was 11 years old when I had the Fontan.

[oVanessa25o]

@MrBigrobmjca3 wow u were 11 yrs old..thats awesome.im glad to hear that there are people out there who are in there 20s living with this..sorry for getting back so late but i dont check this much..

[springtime65]

Way to go ETHAN..:+)

[oVanessa25o]

@springtime65  =)

[lisalisa2020]

MY SON EMILIO IS NOW 6 AND HE HAD THE FONTAN IN 06' AND IT FAILED SO NOW HE IS BACK TO JUST THE GLENN AND WE ARE TRYING THE FONTAN THIS SUMMER JUNE 2011. BEST WISHES TO YOU AND YOR FAMILY

[dream4everlivetoday]

@oVanessa25o He's doing a lot better then the doctors were expecting. He had the Norwood Procedure done at 7 weeks old and had some othe complications that suspended him on the transplant list but as soon as those clear up he will be eligible for transplant.

[oVanessa25o]

@dream4everlivetoday Its tough.My son is waiting for the fontan ..thinking it will be within the year.He has some other issues going on that will result in him having the fontan alot sooner.I hope your nephew is doing great and that he gets his new heart soon..Will keep him in my prayers =)

[oVanessa25o]

@buttabebe117 I was told about CHOP as well but Im from texas so having to travel like that would be impossible.So we went to Houston tx Texas childrens hospital which I wanna say is ranked 3rd for the heart center.I love it there.He has not had the fontan yet hes just gonna turn 2 yrs old.

[buttabebe117]

@ovanessa25o did he get his fontan operation yet?

[buttabebe117]

@oVanessa25o Knowing beforehand is a blessing and a curse because it makes me crazy looking up everything. I was actually referred to go to the Children's Hospital of Philadelphia(CHOP) they are number 2 in the country with heart surgery on pediactrics. The dr who developed the Norwood procedure actually worked for CHOP and developed it in Philly in the 80's. I just met with a bunch of surgeons and dr's this past week and feel very comfortable that I'm in great hands. How's Ethan doing now?