6.21.08 (#6 of 7) - Four days later
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Uploader Comments (samanthahoffman)
All Comments (6)
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Why don't they shoot your hand with novicaine before they break the cord?
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Thanks so much for sharing your experience. Since this was done back in June, what is the update of your hand as of October 2009? Also, did you and do you now do daily stretching of your fingers to prevent it from getting worse?
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Samantha,
Many, many thanks for sharing your experience with us. I t is somehow, akind of a relief.
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I also have Dupuytrens in my right hand, but also my left. I am 34 and a designer and an artist so obviously I am watching the progression carefully. I have no contracture, but noticed a small bump in my pinky so i am getting checked to see if it went past the palm nodule stage. I am hopeful for the Xiaflex. I wonder when it will be available to the public, because most hand surgeons I see tell me to wait for when I will need surgery, and honestly I would rather not.
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I am impressed by your 'documentary';). Found it linked from the Dupuytren Society web page. I can totally relate to the pain that you described so well having suffered a 'frozen shoulder'(and recovered from, through breaking the scar tissue, in physical therapy!). I have the disease in my right hand affecting my little finger and palm. Where does one find a treatment center using the collagenase method in the USA?!? Did you get in to a 'trial' clinic?
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7.31.08 (#7 of 7) After the second injectionby samanthahoffman10,142 views
When I had this done it was a clinical trial so they had to be sure that whatever results they got were due to the drug they were testing and not something else. That's the challenge with a clinical trial. Now that it's on the open market it is done with anesthetic.
samanthahoffman 1 year ago
I'm glad it helps. It seems that there are a number of options.
samanthahoffman 2 years ago
Pumayoshi - If you only have a small bump I woudn't worry about it. It may progress or it may not. You should know, tho, that even at its worst for me I always had full function in my hand. I couldn't flatten it but I could always use it - to draw, to write, to type...no problem.
samanthahoffman 3 years ago