fibromyalgia (FM)

P.A.N.D.O.R.A. International Video Advocacy Contest - Fibromyalgia

Category:

People & Blogs

Tags:

• fibromyalgia
• FM

[MiekeK13]

I wish I could scream this to the people around me..I'm not alright so stop demanding so much from me...

I'm sick of people telling "but you look okay so you are okay"...

[smo200]

The most heart wrenching comment I get is "your a hypochondriac" it hurts to the core, along with everything else.

[MultiReesy1]

I wish I could tell my husband too that his little aches and pains from working a JOB where he gets a paycheck doesn't make him hurt worse than me because he gets a paycheck. I mourn the life I lost, and what I had to adapt to. You have to be very careful about hot and cold water. The climate is an issue to. I found myself a bit better in the desert, but if I over do it, I pay for at the very least 4 to 5 days!

[MultiReesy1]

It validates me to know i am not alone. There is no excuse for the rude comments below, If only people DID understand, they would never say things like that. @Wordey123 YALL EVER HEAR ABOUT SENSITIVITY TO OTHERS FEELINGS? This disease makes a person depressed enough, not to mention pretty damn moody. Flood my inbox, I don't care, I don't read immature comments. YOU FEEL BETTER CUZ YALL AINT NEVER HAD IT. Damn.

[wordey123]

Yall hear of aspartame poisoning? Yall hear about long term gluten sensitivity? Fasting? Thats what cured me from my pains, now I'm normal like I never had it. Weird shit.

[sadihymas]

i was reasently got diagnosed with this and lupus and its vary hard i wish it dident happen to any of us it fricken sucks all u can do is move day buy day and keep moving forward thats all we can do. it sucks well i will talk to u again keep your head up thanks for the video it was good.

[XRayCam]

Hot and cold baths with help with many types of pain. I don't have FM but I am 48 Male with pains from hard work and injuries all my life...and I hurt "everywhere"!!

There is not nearly a joint or muscle that isn't hurting for a moment. Only good thing about the pain center in your brain...you can only feel pain in one area at a time :-) Thank God!!

[bfinfinity]

Michelle, I talking about something THEY don't know about. I know some different treatments. What the others know is nothing like what I am talking about. If you will use contact me at my email, I'm on G mail, I will give you more info, that can help you : )

[mcertonio]

@bfinfinity I Have tried ALL types of massage & Cranial Sacral seems to help-- FOR A SHORT TIME!

When you have Auto Immune Disease--Most FIBRO HELL have Chronic Fatigue--Which is A

STUPID Name for A disease That STEALS your entire LIFE!. This The new HIV

AND like the 1980's wehave NO funding, awareness, help, or -"Spokes Models" LOL

Fibro HELL Michelle

[bfinfinity]

I also have all the same symptoms, or did. I studied massage and then learned how to get rid of a lot of the pain. Then I got off the pain pills. Would you like to know what I learned? I "invented" a lot of the techniques, because I have to do them for myself. When my friend who does massage touches me, she kills me, so I HAVE to do it alone, we can't trade. You can ask me at a a h h massage at g mail, and I will respond the best I can. I am planning to make videos to show what I do-soon.

[THEdowntowndoll]

Much of medical community does not know what to do to resolve auto-immune diseases...sadly...there is a doctor who wrote a book on the major cause of all these au diseases...its still very controversial and only recognized by alternative medicine....Candida...try Amazon.com for book called the Yeast Connection by Dr. Cook. This infection takes over entire body and caused by past use of antibiotics and sugar.

[bordsyko]

I've had people telling my husband I'm a hypochondriac "because that's really what fibro is" or that I "must be fine because she was just laughing and smiling"...when I tell him I'm tired after a day of trying to help out at an outdoor event in the summer sun. To me, it's even worse that they're putting him in the middle because he's getting sick of trying to stick up for me to these idiots...and he shouldn't have to. I'm taking today (awareness day) to try to cram it down some throats!