What is Batten Disease?

Batten disease is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood.
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I work with Sarah Inks as a home healthcare giver and Sue was telling me about this documentary. I was just wondering if it was going to be aired on television in Omaha? If so when? Otherwise, what is the name of the documentary and I will see if I can find the whole version somewhere else! Thank you for your time, I really appreciate it!

I was privledged to know and experience the life of a baten's child through her family. I will tell you that I loved that little girl, my heart aches now that she's gone, and thank God for the gift. Loving these children is an AMAZING blessing.

Thank-you for sharing your son's story and for doing this video. I too am praying for your family and other families who are dealing with Batttens.

I hope this is seen by many many people. Thanks for doing this to help our kids!

we're praying here in the Holy Land for all the batten kids.with the Lords help we pray a cure will be found soon Amen