Rett syndrome Help???
Loading...
Uploader Comments (nicnak1181)
All Comments (22)
-
MY daughter Brandi was diagnosed with Rett Syndrome at the age of 3, she is now 13. My daughter also suffers from Dystonia and was put on the medication Amantadine and it has been a miracle drug for her!
-
Support Rett awareness add Rett STI to your facebook.
-
Try placing her in a "stabiliced sideway" position... with calm and no noice around her... maybe it helps... it helped me!
-
omg take er to the doctor!!is there anything you can do to stop it? they have drugs for stopping seizures i think
-
i was in tears watching this. my peditrician asked me to flim my daughter having seizural activity and it was not unlike your daughters. you just want to know that you are their and its so hard to watch sometimes. there is a look of fear and panic in their eyes. you just dont know what they are feeling. my daughters episodes got quite bad and then she hasnt had anything much for a few months. then lately that figet and her eyes fixing again. her breathing and heart rate changing.on fb debi hall
-
Does she has breathing difficulties ? n her face is so red
-
my daughter will be 21 in march and has retts.. looks more like typical rett mvmts. is your daughter always in bed or is this just bedtime?? lol cute PJ's
9:19
Keely's screaming episodesby jantodd48445,497 views- 3:44
Dandy walker syndrome and spouse abuseby deborahmae281982245,103 views
- 1:05
Adremo Gorredijkby jankeidel3,935 views
- 3:23
rett's videos before and after treatment compared c_발달장애 아동 치료 전, 후.wmvby Phoenix741247,920 views
- 4:48
peyton and kennyby kcleaver5,519 views
- 2:30
Alexis Basile CDKL5, Atypical Rett Syndromeby liser197614,977 views
- 0:26
sindrome de rettby petrelrett26,473 views
- 2:53
Rett Syndrome "When Vanessa Smiles" updated, June 2010by Jaynedoe19568,744 views
- 0:15
film Rett-Syndrom.rmvbby ellenlenz7,258 views
- 8:50
Hip Spica-Older-Child-Cast-Removal-2.mp4by stepscharity83,115 views
- 5:52
incontinenzaby gripitaly92,770 views
- 1:49
Niemann pick type C..by lyndsayseed8,025 views
- 1:54
Rett Syndrome-first dose of glycopyrolate and valproic acid-small seizureby 673991319,122 views
- 0:22
Rett syndromeby yassermetwally42,962 views
- 4:56
Rett Syndrome Awareness. Ciara's storyby veiledexpressions12,270 views
- 1:45
La détection du handicap et la relation mère-enfant en réadaptationby hifrance16,526 views
- 4:24
The Seven Sydney's of Rett Syndromeby mabsbb110,861 views
- 0:42
Jessica experiences the cave of the winds in Niagara Fallsby hopper41011,639 views
- 6:20
Sierra's battle with Rett Syndromeby laineyful42,441 views
Hi My name is Jeantte and I have My son with rett syndrome and he do the same thing as you daughter ...do you know what it means or why that she doing that...
dannyabisaac 4 months ago
@dannyabisaac This is dystonia.. Robyn is being treated but we have interaction in 2 of her medication.. We are currently weaning one in the hope that movements will improve x
nicnak1181 4 months ago
This was just bedtime, she does these movements in her sleep too!!
nicnak1181 1 year ago
HI MY DAUGHTER HAS RETTS ASWELL AND SHE IS 4.. R YOU ON FACEBOOK? AND DO YOU MIND IF I REPOST TO HELP GAIN AWARENESS?
DAVTARZACJUL 1 year ago
@DAVTARZACJUL Yes i am on faceboo Nicky Wall Perriman is my facebook name..
I dont mind if you post this video for awareness....
nicnak1181 1 year ago
Robin i hope one day you and my baby can meet i know is hard to see our daughters with this condition but god send special child for special parents and believed me good things coming soon for Us. I hope we can communicate more often and let me tell you that you have a beautiful daughter like mine, see you soon.
princesaalexia 1 year ago
@princesaalexia Thank you :0)
nicnak1181 1 year ago