Huy an amazing 12 year old boy living with EB in Vietnam (very difficult to watch)

This is Huy, an amazing, brave, funny, bright and wonderful little boy. Huy lives with EB in Vietnam, he is 12 years old. There is no cure for EB only wound care support from loving individuals that care. The hospitals do not recognize EB here and there is little wound care support except for the amazing Tram, Huong, and their wonderful network.

HOW will be adding Huy to our "Starfish" program. He will need wound care supplies for life. Some are available in Vietnam but any are only available in Australia, the USA and outside of Vietnam. HOW will be looking for donations for EB kits (please emails hillary@helpinghow.com for a complete list of supplies not available in Vietnam) and we will also require support through manufacturers willing to donate wound care supplies, trained nurses, educational assistance as well as funding (as usual).

Huy is an amazing boy and did not complain during our visit once, in fact he cried for joy when he was told we would do everything in our power to help bring him a bit of relief and also whatever we can do to help him.

Huy is one of two children I met today living with EB. I wanted to introduce them separately because they are both so unique as all of our own children are. What a charmer and a lovely boy.

HOW has a lot of work to do to deliver the wound care needs for this little man. His only request when asked what he would like if he could have anything was "Doriman (sp) Superman DVD's and books to help him learn English and for his amazing and devoted mother to read to him" What an delight, I am happy to say that not only HOW has a new friend but I am blessed to have met such a brave and delightful child today and also have an inspirational new friend in my life!

Thanks to Ellen Tran, in the USA Huy has been able to receive treatment at FV hospital. Ellen is an Angel! Chantal (Littleangelhugs.com) is another Angel for sending the Angel dolls and HOWs supporters have made it possible for children like Huy to receive these comforting Angel dolls! HOW delivered 3 today thanks to Chantal and HOW supporters ($50.00 USD not only delivers an Angel doll but also helps with direct financial support for these lovely children. :)
www.helpinghow.com to help deliver and Angel doll and direct support for children like Huy.

Category:

Nonprofits & Activism

Tags:

• EB
• Debra
• HOW
• Helping Orphans Worldwide HOW
• Vietnam
• HCMC
• wound care for EB
• Hillary Brown
• Huy
• Mai Tram
• Huong
• help EB Vietnam.

[helpinghow]

Thank you for your suggestion Storybrett, we have so many video's up, and we are all volunteers doing the best we can in many capacities, I am not the best at detail ;) I appreciate your reminder that I should be a little more clear. There is a link on our website which I can't post here because of YT rules but if you go to helpinghow you can check out the link on our website. Thanks for the heads up and suggestion.

[Storybrett]

Good, but wtf is EB? Can't you just put that in the title and write a bit about it in the desciption?

[helpinghow]

@Storybrett Epidermolysis Bullosa (EB) is a rare genetic skin disease that causes the skin to be so fragile that the slightest friction can cause severe blistering—inside and outside the body. Today there is no cure. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability and often early death.

[Storybrett]

@helpinghow Thank you for the info. It's just hard to find it in google, there are tons of comapnies, a beer brand, a publisher, a soccer team and so on.

[helpinghow]

@Storybrett Thank you! I get so immersed in my work that I just forget that I need to explain. I am so happy you pointed that out, I do it a lot. Beer AND Soccer team... I need to check that out haha... thanks!! See we both learned something new ;)

[TheRapiergold10101]

Hes a Brave And Nice Little Kid D: Its Sad To Watch :( But He Is Very Brave And Can He Move Around??

[helpinghow]

@TheRapiergold10101 Thank you for the post and yes he is brave, funny, and an inspiration to many! He can't move much only to hold a cup or a light book. He must sit small stool the size of a dinner plate for 4 to 5 hours to be scrubbed each day. His mother is a hero and this is quite painful, he screams out in pain the entire time, but after he says he is grateful! Can you imagine.... inspiration to so many of us!

[annie123ya]

Oh my gosh, this is sooooooooooooooooooooo sadd :[[ God bless him and god bless you for helping him and visting him!!!!

[tenderheart17]

@AraiaHikari

yes...the full name of the condition is 'Dystrophic Epidermolysis Bullosa'.

[Storybrett]

@helpinghow Im glad i could help, I know this very well, when you are into something, you forget that others don't know what is AS or BD or ICD.

And indeed, i learned something, I didn't even know about the disease. (The beer is polish btw and the soccer team is faroese, there is an 'east brunswick soccer club' too. But there will propably not come together. )

[bulegirl430]

truly hurt

[ttconnor1s]

so sad to watch a little boy like this, Where a little boy live?

[helpinghow]

@threelegbunny3 Thank you for posting! You are 12 and so sweet to post about Huy! We think you are wonderful!!