Congressional press conference announcing pulmonary fibrosis legislation
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I was just diagnosed with PF.
trying to connect with others who are going through it too
feel free to message me privately.
LupusLife 4 months ago
Sen. Coons: the best to you launching new Jobs with clean energy and exporting the technology and products :Hybrid-electric plug-in cars-trucks-tractors made in USA. Solar & Wind 1-5 kW systems for homes, factories, greenhouses, parking lots, roads,backwaters & garbage dumps,etc. Compact fuel-cells ,geothermal systems and new chips & technologies to create Electricity from Light - Heat - Motion for homes & smartphones: America is waiting for these new Jobs,thanks. newenergies2007.blogspot.com
newenergies2 6 months ago
I am just happy to hear people talking about PF. It's been a silent killer and now we are beginning to get attention and from those who can actually put some power behind their concern!
We don't all die within 5 years of diagnosis. Many live 10, 16, years or more. I've been stable for over 5 years, since March, 2006. There still is no cure or treatment. Let us take this as seriously as we can and help where we can!
Learning it can be a familial disease adds to the fear. God Bless us all.
MsBofus 6 months ago
Well I watched the video and I'm glad someone is noticing this as a real killer. When I went to my pulmonologist the other day he said he would come to my home if I needed him to. It was then I realized my portraits of my children I was going to paint and the old project truck were not going to happen. It's a tough world when you have a real want to in life but the can't do stops you. I hope they find a cure for this soon so the children of my grandchildren can skip the worry and the depression.
itsapplied4 6 months ago