a normal day at work

i can go from tiny twitches from dystonia- you can see the ones on my face but my back and hands and leg are going too. Then about 3:30 the whole day changes- leaning into a trashcan in case i throw up at my desk you see how i suddenly look melted. Dystonia is different for everyone but in no way is it fun.

Category:

Nonprofits & Activism

Tags:

• dystonia
• spasms
• advocate
• work
• melting
• sick
• rollercoaster
• shakeyamy
• speak
• out

[pixie1310]

where do u work?

[ShakeyAmy]

i can't say, i am bound and determined to keep my job and they are so extremely supportive. ESPECIALLY when we didn't know what it was for almost 2 years, and several major seizures at work, and in this video we moved a tiny work desk into my bosses office to keep a better log and eye on the progression:)

[ich4202]

its so bad

[Killbuckin]

i've been through the same thing, my head was twisting and every time i would turn it back to normal, it'd twist back on it's own. ik what you're going through but i couldn't imagine having to live with it every day of your life :(

[clabbergirls]

That has to make you tired!

[oddsource]

KEEP it going Amy! I believe in yea and all of ODD clan does too.

[lafatbiche]

blessings to you

[LONGDISTANERUNNER]

UR AWSOME AMY

[foryoutulips]

I'm sorry you are going thru this. My Blessings to you.