A video about Nelda's Challenge: Living with VHL. Von Hippel-Lindau, abbreviated VHL, is a genetic condition involving the abnormal growth of blood vessels in some parts of the body which are particularly rich in blood vessels. Please help support Nelda with prayers and any gift offerings to meet her medical needs. www.neldasvision.org
I followed my McCoy family line to VHL after seeing a story in the news about how tumors called Pheochromocytoma may have caused their anger.I've had my first urine test read high kreatin levels and the ultrasound showed a mass on my right kidney. would love to chat.
leathermenace 4 years ago
Hi Nelda, you are very brave. Hoping and praying you can be as healthy and happy as possible. Speak with you soon.
idressner 4 years ago
i hope you are doing so much better. i am much younger and i just had surgery for vhl that left me in the same predicament. you're doing so much better than i did in rehab!
deejaihuajai 4 years ago
God Bless you...if I make it I am going to help fight VHL. I will keep you in my thoughts and prayers. My sis is very very sick. Please keep in touch with me. Ed
edbassmaster 4 years ago
I hope for you "better days" God Bless.
Paraganglioma 4 years ago