Amyotrophic Lateral Sclerosis ALS, Motor neurone disease MND

Im Jeannie aged 29, I first noticed ALS/MND in June 2000, diagnosed with ALS July 2001...this video is to show everyone how ALS affects you.

Category:

People & Blogs

Tags:

• Health
• ALS
• MND
• Amyotrophic
• Lateral
• Sclerosis
• Lou
• Gehrigs
• Disease.
• motor
• neurone
• disease

[Schizomanicman]

My Mum has just been diagnosed with upper and lower als MND and I know how much of an effort it would have taken you to do that. I will show this to my Mum in the hope that seeing this will give her the strength to do the same. Wishing you all the very best for your future :)

[jeanals]

Hi, sorry to hear your mum has just been dxed with als/mnd, where in the world are you? does your mum have internet access? I'm not totally sure how youtube works, would it be possible for you to contact me privately here on youtube?

Thoughts and prayers to your mum and family.

Best wishes Jeannie x

[teflonmagnet]

thanks for providing this glimpse into your struggle with als. your smile is wonderful.

[jeanals]

Thank you :-)

[wowfornoobs]

I can't imagine what it would be like to have this disease or how to act if one of my friends would get this disease. I imagine it would be a very hard trial to pass and i don't think that anything i say would make it any easier for either you or anybody else but i sincerely hope that you and everybody that watches this video gets better and that a cure is found. I wish you the best. Regards, Robin.

[childofgod413]

@The391956 MS presents with upper motor neuron damage as opposed to both upper and lower (ALS) MS does not affect LMN and an EMG can easily show this as can a naked eye, lower motor neuron damage presents with weakness fasciculations, atrophy, and more, these are easily distinguishable to a neuro...good to be careful with commanding absolutes without knowledge ...and if you look at statistics there are 10%+ that live past the numbers you quoted...and that number is on the upswing

[The391956]

@jeanals Jeannie A injustice has been done to you. You were mis dx with als people die within 2 to 5 years who can't eat can't talk can't WALK you are walking, talking and I would guess eating normal food and no resperator and OUT LIVED the 2 to 5 years and still not bedridden which happens within 2 years of dx You got MILD M.S. or something else not ALS You need to see another doctor MILD M.S. is bad enough to live with.

[HylianFury]

pretty girl tough :P 

[HylianFury]

does she still live ? i have had fasciculations for a year now no weakness tough but im scared as hell !

[hellspawnds]

My friends mom is diagnosed. She's been on heavy metal detoxification and raw food diet since last christmas, she has regained some of her speech and arm strength. Just sayin'... Peace out.