Fatal Familial Insomnia

Obviously you should find out whether or not you have it so that you can decide whether or not you want to have children, if you don't want to pass it on, or to know if you'd need to screen the fetuses for the disease (if that kind of stuff is OK with you).

This seems like a very torturous way to die. My heart goes out to all those who have FFI,and their families.

i really dont understand all these people deeming the sisters (or any others with the disease) slefish for having kids. and in reference to an earlier comment, they dont condemn their kids to a life of suffering. what a damn stupid remark. i feel more sorry for kids who grow up being abused then kids with a possibility of the diease.. like breast cancer had inheritable factors, as do other genetic diseases.. everyone dies at some point and you can still have a happy normal life regardless

People with FFI are fucking lazy
''omg please bring me cookies because i am to tired to get them''

lazy fuck get em yourself

i think i have this b/c i have spells where i can't sleep!!!! i took 15mg of remeron and a 0.5 klonopin and still kept waking up! maybe michael jackson had this!!!

try melatonin or pot

TIVOOOO

The amyloids form in the thalamus...basically shutting it down...and thus your ability to sleep. Thai Ngoc has said he hasn't slept in 33 years...obviously bs. These people die within 9-12 months of simply not being able to sleep. That is the defining symptom that leads to all the other complications (confusion, loss of hunger, physical fatigue)

jesus, what a curse....

I havetrouble sleeping a lot too. I cant remember falling asleep sometimes and I have really vivid dreams.