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Prader-Willi Syndrome: We started our own charity!

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Uploaded by on May 25, 2008

This is the story of how Keegan and Tanya Johnson of Mississauga Ontario created their own charity from scratch after learning their beautiful first son Dante had Prader-Willi syndrome. For more information please go to www.fpwr.ca in Canada or www.fpwr.org in the US

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  • Thanks Keegan and Tanya for all of your support and help with awareness for PWS. My son Nolan has PWS and we met you at the FPWR conference in Louisville a few years ago. You are both amazing advocates for all of our children. Thank you for all you do!

  • Thats my teacher!! :D (Mrs. Johnson)

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