Angel's Favorate Dummy-last time in his life最后一次吸奶嘴

Our son Nicholas was born at 8.15am on March 31, 2009 (Australian Eastern Time), died at 15.37 on May 20, 2009 .

My husband and I finally understand that life is so valuable. We also realize that the world is lovely although the reality is cruel.

For so many days (51 days), little Nicholas has been struggling hard to live in this world. He is really very strong. But unlike other babies, Nicholas was born with no sound of crying. He could only tell us that he was crying by his tears, silent tears. He was not diagnosed until the muscle biopsy result came back on the 30th day after his birth and he was diagnosed X-linked Myotubular Myopathy.


Nicholas loved his father and mother. He liked his family so much. Like normal babies, he loved drinking milk, but unfortunately he did not have enough strength to suck and swallow his mom's milk and had to drink milk through a naso-gastric tube. On the last day of his life, we dipped his dummy into my milk to let him have the chance to taste the taste of mom's milk and it ended up with him sucking that dummy using up all his strength till the last minute of his life.

Nicholas is very smart. To prevent the dummy falling out, he used his left arm to hold his right arm, which held the dummy in place. We felt that he had grown up a lot in those 51 days.

Nicholas is very cute. His fingers are like mine, which are long and beautiful while his feet are like his father's, which are flatfeet.

Nicholas was quiet at the moment of passing away. It was very sad for us to see him leave us but after the long-suffering, we all felt it is good for him to leave so peacefully and from then on he would never suffer from those pesky machines and tubes.

My angel was finally freed, and went to the place where he belongs to. However, his smiles, his tears, his everything will be remembered deep in our heart.
Nicholas Qihao Yuan,中文名为袁启皓,生于2009年3月31日8时15分(澳洲东部时区),死于2009年5月20日15时37分.

终于理解了,生命是那么的可贵.也理解了,世界是可爱的,现实是残酷的.

启皓坚持了这么多些日子,他非常的坚强.他没办法像别的孩子一样哭泣,他只能以自己的眼泪告诉我们,他在哭,无声的哭泣.
启皓非常喜欢爸爸和妈妈,喜欢自己的家人,他非常希望能够自己吸到妈妈的奶水,可惜力气不够大,虽然能通过管子喝到奶水,但是只尝到过一次味道,还是用奶嘴沾了一点点奶,­结果启皓非常用力的去吸那个奶嘴.在他离开前,他以他前所未有的精力去吮吸那个带有妈妈味道的奶嘴.启皓很聪明,他会用手臂把奶嘴撑住,防止奶嘴掉脱落,让我们感觉他已经­长大了很多.启皓很可爱,他的手指像妈妈一样,长长的,非常的漂亮;脚丫子像爸爸一样是平足.启皓走的时候很安静,结束了那长久的痛苦,终于不需要继续那些讨厌的机器和管­子.

启皓终于解脱了,请大家多多保佑他,谢谢!

启皓的网站是 www.babyhome.com.tw/vsbb

启皓,爸爸和妈妈非常非常的爱你!

Category:

People & Blogs

Tags:

• Dummy
• last time
• 奶嘴

[waiyungai168]

皓皓﹐你好乖﹗願你下一世做個健康快樂人﹗

[NicholasYuan09]

thank you for your words for Nicholas. May I ask who you are?

[kooklaG]

I'm sorry to hear about Nicholas. He was so precious- a very beautiful boy! <3

[waiyungai168]

我只是一個很喜歡小孩子的人﹐偶然見到了 Nicholas, 可能是他也想我疼疼他吧﹗