In this edition of Mayo Clinic Medical Edge, learn about Postural Orthostatic Tachycardia Syndrome (POTS), a debilitating condition that typically affects high-achieving teens.
@TheMushroomDrummer .. That sounds like me a long time ago (10 years now). I was lucky enough to have a doctor who finally figured out the problem. It gets better with the right treatment. Good luck!
This is all true except the part where she claims the age cut-off is about 20...it is possible that the worst stops but the dysautonomia issues can continue.I am 52 years young and I got worse as I got older.
If you have POTS or another dysautonomic nervous system disorder, there is a new group on FB called Postural Orthostatic Tachycardia Syndrome (POTS) where you can share your stories and what you've learned.
A friend of mine had been really sick for a while. During that time, I traveled to Mayo Clinic for my own health problems and was diagnosed with POTS. I had never heard of the disease and neither did anyone back home, but we realized that a lot of my friend's symptoms coincided with those of POTS and were worse than mine. Afterwards, she was diagnosed with and treated for the illness.
Enterovirus infections causes POTS. look up Dr John Chia and CFS. Most patients with POTS have gastrointestinal issues. Enterovirus infects the stomach nerves and travels up the nerve to the brain stem where it causes POTS. The virus lives inside the nerve cells where it is protected from the immune cells, but does not destroy the cell, noncytopathic. We need an Enterovirus Antiviral medication!
@Timburtonrox11 yea I've been having symptoms like u and wat the video is saying for two months now I have had so far had an MRI, blood work, and an EEG which all came back normal the only strange thing was tht after giving blood i felt sick and passed out they keep saying its vertigo but it doesnt show fluid in my ears like wat would happen during vertigo this all started slowly after i got the flu so believe me u are not the only one who has had an experience like this :) I hope u get better
I am thinking about getting tested for this. I have been in and out of the hospital for two weeks with extensive spells of chronic fatigue, dizziness, tremors and muscle weakness. I have been put through the ringer with brain scans and blood work, and they are coming up with nothing but the possibility of too much stress. I don't want to buy that diagnosis. Has anyone had a similar experience?
@TheMushroomDrummer .. That sounds like me a long time ago (10 years now). I was lucky enough to have a doctor who finally figured out the problem. It gets better with the right treatment. Good luck!
casserilla331 4 months ago in playlist Dysautonomia/POTS
This is all true except the part where she claims the age cut-off is about 20...it is possible that the worst stops but the dysautonomia issues can continue.I am 52 years young and I got worse as I got older.
joyceyrose 6 months ago
If you have POTS or another dysautonomic nervous system disorder, there is a new group on FB called Postural Orthostatic Tachycardia Syndrome (POTS) where you can share your stories and what you've learned.
nette12181 8 months ago
A friend of mine had been really sick for a while. During that time, I traveled to Mayo Clinic for my own health problems and was diagnosed with POTS. I had never heard of the disease and neither did anyone back home, but we realized that a lot of my friend's symptoms coincided with those of POTS and were worse than mine. Afterwards, she was diagnosed with and treated for the illness.
SahrethsShow 10 months ago
@couragegirl1 I should add, I have POTS.
couragegirl1 1 year ago
@mikeer222 POTS isn't caused by food allergies.
couragegirl1 1 year ago
Enterovirus infections causes POTS. look up Dr John Chia and CFS. Most patients with POTS have gastrointestinal issues. Enterovirus infects the stomach nerves and travels up the nerve to the brain stem where it causes POTS. The virus lives inside the nerve cells where it is protected from the immune cells, but does not destroy the cell, noncytopathic. We need an Enterovirus Antiviral medication!
RichardBri 1 year ago
@Timburtonrox11 yea I've been having symptoms like u and wat the video is saying for two months now I have had so far had an MRI, blood work, and an EEG which all came back normal the only strange thing was tht after giving blood i felt sick and passed out they keep saying its vertigo but it doesnt show fluid in my ears like wat would happen during vertigo this all started slowly after i got the flu so believe me u are not the only one who has had an experience like this :) I hope u get better
TheMushroomDrummer 1 year ago
This is informative but I don't like how it implies that only teens can get it and they can just "grow out of it."
That's preposterous!
Pizzazz80 1 year ago
I am thinking about getting tested for this. I have been in and out of the hospital for two weeks with extensive spells of chronic fatigue, dizziness, tremors and muscle weakness. I have been put through the ringer with brain scans and blood work, and they are coming up with nothing but the possibility of too much stress. I don't want to buy that diagnosis. Has anyone had a similar experience?
Timburtonrox11 1 year ago