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Living with a rare metabolic disease (PKU) in Italy - Renza Barbon and her daughter, Laura

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Uploaded by on Apr 24, 2009

A touching video portrait of Renza Barbon, President of UNIAMO, and her 22-year old daughter, Laura, who lives with a rare metabolic disease (PKU), on the occasion of Rare Disease Day 2009. UNIAMO is the Italian rare disease federation (www.uniamo.org). Produced by the Italian television station TG5.

In Italian.

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Nonprofits & Activism

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License:

Standard YouTube License

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  • Laura felicidades! Tu historia me inspira. Soy michelle y tengo una hija Fenilcetonurica diagnosticada tarde tambien./ Congratulations Laura! Your story inspires me. Im Michelle and I have a late diagnosed PKU girl too.

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