A touching video portrait of Renza Barbon, President of UNIAMO, and her 22-year old daughter, Laura, who lives with a rare metabolic disease (PKU), on the occasion of Rare Disease Day 2009. UNIAMO is the Italian rare disease federation (www.uniamo.org). Produced by the Italian television station TG5.
In Italian.
Laura felicidades! Tu historia me inspira. Soy michelle y tengo una hija Fenilcetonurica diagnosticada tarde tambien./ Congratulations Laura! Your story inspires me. Im Michelle and I have a late diagnosed PKU girl too.
michellehays 2 years ago