molly walking again

Molly walking around the house on video again. Before we can film Molly on video, she orders us "Don't say good job, and don't talk about it"

This walking is very exciting for us. Molly is 3 years old with Brittle Bones, or Osteogenesis Imperfecta Type III.

Category:

People & Blogs

Tags:

• OI brittle bones
• Osteogenesis Imperfecta

[ckprimus0910]

I love this video! My daughter is 12 months old with OI and we have struggled with several femur breaks. She is once again standing and I wonder how she will ever walk. This video of your daughter made me smile, it gives me hope for my little girl. Molly is so cute! People take walking for granted sometime, but I'm sure you are so proud and you should be.

[typer1189]

Molly had very bowed femurs when she was born, so we had her legs rodded with F-D (Fassier-Duval) rods when she was around 15 months old. That combined with the pamidronate treatments has made a huge difference for Molly.

[karijeanurrutia]

Hello my name is Kari Jean Urrutia. My son has oi type 3 his name is Skyy He will be 8 years old next month. Tomorrow he will have a rod placed in his leg. Skyy has had this operation before but each he gets it I am scared. Skyys dad has oi too but Skyys backs more then his dad did at his age. I am 5 '4 so we are a very odd couple. If you have any questions email me at kari jean urruita at yahoo. com

[johnnyrottenwigan]

I lve in the uk, i have 2 children with type2 oi, she looks type 2, youll go to hell and back with the pain worry and the people who think youve harmed them, but my kids are now 17 and 19, my daughter at 19 has her own child, and my boy is looking forward to his new car this week...god bless you.

[Stonymypony]

I am reading Handle with care by Jodi Picoult. I hope that some day we will make even better treatments for this horrible disorder but in the meen time good luck :)