@bslavkopa What the hell are you talking about, you really have no freakin clue what you are on about do you?? please stop insulting people that suffer with one of the most painful conditions in existence, why would anyone want to pay you? CH is one of the hardest conditions to treat and takes an average of ten years to get a correct diagnosis for. Please do your research before you suggest fresh air as a cure, I realise you want to help but thats what the neurologists are there for.
Do any cluster HA sufferers ever get red lesions on their forehead or jaw after a particularly bad HA? They stay for a few days and then disappear? Wierdest thing, my Docs have no clue.. but it is related to the severity of my HA's.. had em for years now, no one knows why or what (some have suggested shingles.. but they are not really painful). Only on my face and head. I thought maybe due to super hot washcloth I use to distract from pain.
All the clusterheads, Will do everything to get some relief, like me I have them chronic, so stop with sending this crap! I have tried everything, only the oxygen and Imigran work's.
To all patient's bless you, fight true feeling you all ;(
I am Serious, I am a chronic, who suffered both Migraine and Cluster for over 30 years, Now I do not suffer and do not use the Oxygen, or Mushrooms. Done my own research. That is why I chosse that nick name.
Hope one day I have the pleasure making all of you free of the beast.
Maybe I'm telling you something you already know, but oxygen is most effective when it is used at the first sign of a cluster, and used without interruption. I also suggest using a larger bag on the non-rebreather and a flow of 12-15 lpm.
@bslavkopa What the hell are you talking about, you really have no freakin clue what you are on about do you?? please stop insulting people that suffer with one of the most painful conditions in existence, why would anyone want to pay you? CH is one of the hardest conditions to treat and takes an average of ten years to get a correct diagnosis for. Please do your research before you suggest fresh air as a cure, I realise you want to help but thats what the neurologists are there for.
3yellowzebras 8 months ago
Do any cluster HA sufferers ever get red lesions on their forehead or jaw after a particularly bad HA? They stay for a few days and then disappear? Wierdest thing, my Docs have no clue.. but it is related to the severity of my HA's.. had em for years now, no one knows why or what (some have suggested shingles.. but they are not really painful). Only on my face and head. I thought maybe due to super hot washcloth I use to distract from pain.
ltsgoyanks 1 year ago
@clusterheadachesfree You are full of shit! There is no cure.
All the clusterheads, Will do everything to get some relief, like me I have them chronic, so stop with sending this crap! I have tried everything, only the oxygen and Imigran work's.
To all patient's bless you, fight true feeling you all ;(
magje77 1 year ago
@131Northface,
I am Serious, I am a chronic, who suffered both Migraine and Cluster for over 30 years, Now I do not suffer and do not use the Oxygen, or Mushrooms. Done my own research. That is why I chosse that nick name.
Hope one day I have the pleasure making all of you free of the beast.
clusterheadachesfree 1 year ago
@clusterheadachesfree
BS!!!!!
You're too funny!
No such thing as cure my friend!
131Northface 1 year ago
My sister was just diagnosed with CH and she goes through what you are going through everyday. I am so sad and don't know what to do.
My prayers go to all you guys who are suffering from CH. Love from Canada
faykaf 1 year ago
Maybe I'm telling you something you already know, but oxygen is most effective when it is used at the first sign of a cluster, and used without interruption. I also suggest using a larger bag on the non-rebreather and a flow of 12-15 lpm.
dstarnik 1 year ago
No ...NO drugs or oxygen No Mushroom and no LSD , The cause is been known .They just do not want you to stop all this medicines
I was a cluster headaches , Now I am free without drugs ,Without Oxygen Without herbs And without LSD
INTERSTED Contact me
clusterheadachesfree 2 years ago
check out ''the ph miracle'' by dr young
vipdelta 2 years ago
Watching you makes me cry...
I know how it is.
I wish you all the best and all the luck you can get!
Keep it up man, I'm with you in my thoughts!
Love from The Netherlands!
wXLp2oo8 2 years ago