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FOP Facts & Insights: What is FOP?

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Uploaded by on Mar 3, 2009

The IFOPA presents the FOP Facts & Insights series, an video collection offering information for FOP patients, parents and caregivers. This video provides an overview of the rare bone condition fibrodysplasia ossificans progressiva (FOP) and includes information by Frederick Kaplan, M.D. and Dr. Eileen Shore, Ph.D. of the University of Pennsylvania School of Medicine. For more information on FOP, or to donate to our cause, visit the IFOPA website at www.ifopa.org.

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  • From what I've read, diagnosis of the disease is made relatively early in the sufferer's life. How old is your father? Are his large toes deformed? Deformity of the large toes are the most prominent tell tale signs of FOP sufferers at an early age.

  • how often is fibrodysplasia misdiagnosed? my dad told me the doctors says he has it. he just told me yesterday, and he just found out this week. is it pretty sure that he has it, or is misdiagnoses common?

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