Happy New Year, and: MY SON WITH CHIARI - Update

Please check out the following channels!


Alex & Rhonda's channel:
http://uk.youtube.com/user/Lollipop12104

Rhonda is planning on making an update video with Alex, so you best subscribe to their channel, by, for now, subscribing to their favourites :-)! And, if you like, write both of them a few nice words - they can really use some cheering up now!


Wikipedia information about Arnold-Chiari Malformation:
http://en.wikipedia.org/wiki/Chiari_Malformation


Very good information website about Arnold-Chiari Malformation:
http://www.conquerchiari.org/index.htm


Troye Sivan's channel:
http://uk.youtube.com/user/TroyeSivan18

Troye Sivan is a uniquely marvelous and gifted singer; please check out the video response he made to Alex' video:

UNSUNG HERO
http://uk.youtube.com/watch?v=Y9cpoI90CCg&feature=channel_page


My virtual "Thank you!" for Troye:
http://www.flickr.com/photos/theamarand/2989803597/
... XD!


Please check out the website of composer / songwriter / singer Mark Schultz, who wrote the beautiful song HE'S MY SON:
http://www.markschultzmusic.com/

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Category:

People & Blogs

Tags:

• Alex
• Rhonda
• Lollipop12104
• Arnold-Chiari
• Malformation
• TroyeSivan18
• Mark
• Schultz

[TheViperkid22]

hello all, my name is daryn brehio, i am 22 years old, i had my surgery on may 20,2009, the surgeon told me that my surgery was successfull, please believe me my surgery wasn't successfull, i had had manigise 3 times, i have had 4 spinal taps done, all 4 times my white blood cell count was extremely high, i have headaches,nausia,vomiting,fain­ting,dizzyness,and extreme electrical shocks in my head today that still kill me. please call me. my number is: 207-549-5199 ask for daryn

[Truedantalion]

Hello, Daryn!

I'm so sad to read that your surgery did not have the allover desired effect, and that you are still suffering from such a variety of symptoms. There's only so little I can say, except that you still should not give up, but keep a positive attitude and the things you can do; as long as there's life, there's hope.

If you like, please write to Alex' Mum, on her channel Lollipop12104 (link is in the description box), for exchange of information and experiences. Knowledge is power!

[ChuckyIsSoCute]

i had the same disease,i had done posterior decompression,now planning to do anterior decompression cause having bad spasticity such as cloners,sensitive tendon reflex,and stiffness and also neck tiredness that make me very umcomfortable

[Truedantalion]

I am so sorry to hear that the first treatment did not have the desired effect. But I wish you all the best for the new treatment!

If you like, please contact Alex' Mum directly (her channel: lollipop12104, link is in the description box), too, to exchange information and experiences made, and further details.

[fehquig]

Fingers crossed :)

[Truedantalion]

Thank you! But please do watch Alex' video now already; it's worth it. And Alex is very happy about any comment you send him :-)!

[Kasapamese]

rontfanatbbialth

=

rolling on the floor and not able to breath beacause i am laughing too hard

Hope you blushed Michael :D

[Twirretwarre]

Rhonda, I support you and your son completely!!! :-) Your friend Roeleke

[Kasapamese]

I am glad I see that you're back online again. I haven't heard from you anymore. Neither on iloveLIBERA or SasasFavorites.

[Truedantalion]

You're welcome, Rhonda :-)! Yep, we'll make it, I'm sure of that, too. Looking forward to your message!