My never say never story: Life with Transverse Myelitis.
Uploader Comments (KatherineIrenee)
Video Responses
All Comments (41)
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I contracted TM when I was your age and I now walk with a cane, good on yah :-)
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I got TM when I was 10 and now I'm 20 years old. When I first noticed that there was something wrong with me was the night before I went to bed. Everything started getting slower (slow motioned) when I moved. When I woke up, after 10 minutes I started feeling my energy leave my body, it was a very weird feeling that I never felt before. It took me to recover my walking skills about 2-3 years, and I still have side effects on both legs. I can't move my fingers on my left arm.
Hope you get better
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God Bless you your amazing!
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my ancles r the same way now I got it this summer but thank you god I can walk
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I have acute Transverse myelitis..it is the worst thing in the world..
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@KatherineIrenee Yes, unfortunately she lost her battle with TM after several rounds of plasma transfusions. I look at you and it makes me so happy that there are a lucky minority that overcome this disease.
if you dont mind me asking can you go to the bathroom the same I have tm and its slwoly rising and im wondering what you have to do differently btw im 13 and in 8th grade and having troubles getting used to my new life
luckys49292 3 days ago
@luckys49292 everything is 100% back to normal with the bathroom stuff
KatherineIrenee 1 day ago
You are so very blessed! My best friend was diagnosed with TM Christmas day 2009 and she passed away 8/16/2011. Be thankful for everyday that you're given and NEVER GIVE UP! God bless you!
tracgyrl 3 months ago
@tracgyrl Yes i know I am. I thank God everyday that I'm alive and well. If I can ask, did she die because of TM?
KatherineIrenee 3 months ago
Great video, your optimistic attitude is definitely the right way to go.
I got TM back in 2004, one leg paralysed other numb. I've been pretty lucky - whilst I can't run I can walk reasonably normal, although it takes a little concentration.
I've been nearly 7 years now and I swear Im still seeing small improvements on occasion. Nothing like the first few years but enough to make a real difference. So keep trying with the ankle :-)
jamesfrbray 5 months ago
@jamesfrbray we seem to have similar stories. it'll be 4 years in november and now i even see a little improvement. If you don't mind me asking, how old were you when it happened?
KatherineIrenee 5 months ago