Complex Partial Status Epilepticus CPSE

(0:13-0:19 is when the seizure occurs)

CPSE: I woke up from a nap and my roommate was watching the violent finale to the Departed. This dangerous combination of stress and odd sleep patterns resulted in this situation. I proceeded to lose consciousness, and you can see my neck muscles tighten. I gaze into nothingness roughly halfway through the video, after I make a bad joke (I edited profanity from The Departed, easier said than done :)).

This is what epilepsy can look like. Not everyone has stereotypical convulsive seizures. Mine are subtle and don't go away until I take liquid medication (Diazepam), which I did minutes after this video was shot.

At this time, if I remember correctly, I was taking 100 mg of Zonegran (Zonisamide).

***UPDATE: I'm on a medicine (Lamictal) now that seems to keep this in check. I have only had 1 seizure in the last 6+ months. I was unable to film that one because I was without my camera, but I've told those close to me to take a video of my next seizure. Hopefully I will have footage of the origin of the seizure, the medication, and the aftermath.

I appreciate any comments. Thanks.

Category:

People & Blogs

Tags:

• epilepsy
• cpse
• status
• epilepticus
• complex
• partial
• diazepam
• zonegran
• lamictal
• seizures
• Lamotrigine
• zonisamide
• broca's
• area

[menjomogo]

That's not status epilepticus, pardon my pedantics. I've got TLE and a lesion on right top side of brain.

Status epilepticus is when a seizure continues over 2, 3 minutes with out stopping or interruptions. That situation required immediate medical attention. Your seizure - so quick, I'm jealous! Was just fine.

[andrewjohnsmith]

@menjomogo You're right- it doesn't technically show status epilepticus. I called it that because it's my condition - I had no idea that 27,000 people would watch this and analyze it. The seizures didn't end after this video, I had many more and took my medicine. In fact, on two occasions I've had seizures for 5+ hours straight, that developed into convulsive seizures and serious injury. I wouldn't say I'm "lucky", although surviving both of those... See my other vids for S.E. Thanks.

[Charlesmillz]

i to have temporal lobe epilepsy and take zonisimide the side affects are pretty bad but overcome the negative affects .. Like i get acid reflux and very bad heartburn/chest pains assoiciated with the medicine

[andrewjohnsmith]

@Charlesmillz i'd ask your doctor about lamictal (generic is lamotrigine)... it worked so much better for me, without the side effects. i still have seizures, but they're more predictable now.

[jodifu6274]

@menjomogo There are many types of SE, and not all of them manifest the same way.

[Niceboy3377]

@andrewjohnsmith wat does it feel during it

[menjomogo]

I honestly don't get why it's called SE on you - yours look like partials to me - you're still conscious. My Complex Partials had me walking like a zombie (before they were in vogue) and hitting things, knocking things over, moaning like a zombie (again). Everyone is different..yours seem simpler than mine. Then again, I could just be more complex :P than you :P (j/k, silly)

[menjomogo]

Status epilepticus is a life-threatening condition in which the brain is in a state of persistent seizure. Traditionally it is defined as one continuous unremitting seizure lasting longer than 30 minutes,[1] or recurrent seizures without regaining consciousness between seizures for greater than 30 minutes (or shorter with medical intervention).

[bluesbaby123]

I had a right temporal lobe resection, it did not leave me seizure free. I have been on lamotrigine for the last 2 years. I have fewer seizures,but the stuff is quite dangerous if you miss a dose...I found out the hard way. I hope everything will be wonderful for you, and some day there will be a cure.

[MOBETTER4YA]

Thanks for sharing:)

[andrewjohnsmith]

@DrFuckingPepper yep, exactly